Media

For media inquires or more information on Dravet syndrome or the Dravet Syndrome Foundation, please contact the organization.

Media Contact

Mary Anne Meskis
Executive Director

Dravet Syndrome Foundation
PO Box 3026
Cherry Hill, NJ 08034

203.392.1955
maryanne@dravetfoundation.org

News Release Archive

Oct 7, 2020: The Dravet Syndrome Foundation Establishes Endowment Fund

Dravet Syndrome Foundation has established the DSF Endowment Fund to support the foundation’s mission by providing an alternative source of funds for current and future use.

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Aug 9, 2016: Dravet Syndrome Foundation and Children's Hospital Colorado Awarded PCORI Funding to Develop Comparative Effectiveness Research

The project’s goal is to develop an ongoing collaboration with a greater understanding of the needs of the Dravet syndrome community.

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Oct 15, 2015: Dravet Syndrome Foundation Funds Study that Establishes Higher Incidence Rate of Dravet syndrome

Incidence rate of Dravet syndrome much higher than previously thought.

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