RAISING HOPE & CHANGING LIVES THROUGH RESEARCH
The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise funds for Dravet syndrome and related epilepsies; to support and fund research; increase awareness; and to provide support to affected individuals and families.
OUR IMPACT
We know that the fight against Dravet syndrome will never be successful without teamwork. None of us can do this alone and to achieve great things we must work together. Thanks to our community’s combined efforts, DSF has many accomplishments to be proud of. Join #TeamDSF by making a donation, starting a personal fundraising campaign, or setting up a social media fundraiser this year.
$650,000 in new research grant awards, bringing our total awarded to over $5.6M
$196K in patient assistance grant awards since 2009
Our 12th annual Research Roundtable
Support for an International Treatment Consensus project
Development of our Newly Diagnosed Patient Kit
The formation of the Seizure Action Plan Coalition (seizureactionplans.
org)
DRAVET STORIES
These Dravet syndrome families have a lot to share. Read about their journeys and advice.
DSF RECENT NEWS
Keep up to date on current information in our Decoding Dravet Blog, our DSF Research Review and our monthly News & Notes.
