News & Updates
What is Special about a Specialty Pharmacy? A Tour of AnovoRX
While many of the families in the Dravet syndrome community obtain one or more [...]
Guest Blog Post: Parting with Predictibility
Today's Guest Blog Post comes from Joy Segovia. Joy is a freelance science and [...]
FINTEPLA® Receives FDA Approval for Treatment in Dravet Syndrome
On June 25th, 2020, the FDA announced approval of FINTEPLA® (fenfluramine) oral solution, CIV [...]
Stoke Therapeutics Launches MONARCH Study
The most common cause of Dravet syndrome is a genetic mutation in the SCN1A [...]
#MemberMonday Spotlight
Meet Tina & Ryan! This #MemberMonday meet Ryan and his mom, Tina [...]
Dravet Syndrome Foundation is a non-profit organization dedicated to aggressively raising research funds for Dravet syndrome, a rare and catastrophic form of epilepsy beginning in childhood, and related conditions. By offering research grants for syndrome-specific research with a novel approach, DSF can move researchers and the medical community forward to find better treatments and a cure while assisting afflicted individuals and their families.
Meet our superheroes who fight every day against Dravet!
Find out how to help us in the fight to cure Dravet syndrome