News & Updates
Back to School Anxiety in the Dravet Community
While the pandemic has had a devastating effect for all students, most special ed [...]
Taking Steps Toward a Cure
Since 2009, DSF Steps Toward a Cure walks have gathered the Dravet community to [...]
Sustaining Telehealth Beyond the COVID-Era
I often reflect on the amount of time spent traveling to and from the [...]
Lessons Learned: The Importance of the Patient Voice
Patient-Centered Outcomes Research (PCOR) is research that provides patients and their clinicians with evidence-based [...]
Last Call to Party in Your PJs
Last Call to Party in Your PJs for Dravet! It's not too [...]
Dravet Syndrome Foundation is a non-profit organization dedicated to aggressively raising research funds for Dravet syndrome, a rare and catastrophic form of epilepsy beginning in childhood, and related conditions. By offering research grants for syndrome-specific research with a novel approach, DSF can move researchers and the medical community forward to find better treatments and a cure while assisting afflicted individuals and their families.
Meet our superheroes who fight every day against Dravet!
Find out how to help us in the fight to cure Dravet syndrome