News & Updates


Dravet Syndrome Foundation is a non-profit organization dedicated to aggressively raising research funds for Dravet syndrome, a rare and catastrophic form of epilepsy beginning in childhood, and related conditions. By offering research grants for syndrome-specific research with a novel approach, DSF can move researchers and the medical community forward to find better treatments and a cure while assisting afflicted individuals and their families.

the foundation
What is Dravet Syndrome?
Click here to learn more about Dravet syndrome and childhood Epilepsy
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Dravet Syndrome Stories

Meet our superheroes who fight every day against Dravet!

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Find out why Dravet Syndrome Research is our hope for a cure
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Get Involved

Find out how to help us in the fight to cure Dravet syndrome

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Upcoming Events

In the best interest of our medically fragile community due to the COVID-19 outbreak, all in-person events have been postponed through June 30, 2020. Please check back for updates to our events, and thank you for your continued support during this difficult time. 


Steps Toward A Cure: Lowell (POSTPONED)

June 6 @ 10:30 am - 1:30 pm

Double Down for Dravet: Peoria (POSTPONED)

June 13 @ 6:30 pm - 11:00 pm

Dance For Dravet

November 6 @ 6:00 pm - 11:00 pm