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DSF Conference June 23rd-25th, 2022!
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DRAVET SYNDROME
What is Dravet Syndrome?
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PROFESSIONALS
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Toggle Navigation
DRAVET SYNDROME
What is Dravet Syndrome?
Dravet Syndrome in Adults
Dravet Stories
Virtual Remembrance Wall
Decoding Dravet Blog
DSF News & Notes
ICD-10 Codes
CAREGIVERS
Programs & Support
Newly Diagnosed
DSF Family Network
DSF Parent Support Groups
Patient Assistance Grants
Caregiver Connect Grants
DSF Birthday Buddies Club
Super Siblings Club
Bereavement
Education
2022 DSF Conference
Day of Dravet
Brochures & Resources
Research Review
Educational Webinars
Patient-Centered Research
Medical Care
Find a Doctor
Comprehensive Care Centers
Surgery in Patients with DS
Participate in Research
Gene Therapy
AdV Vaccines & Gene Therapy
PROFESSIONALS
2022 DSF Conference
Gene Therapy Education
Listen + Learn Webinars
Treatment Consensus
Surgery in Patients with DS
COVID-19 & Dravet syndrome
Doctor Registration
ICD-10 Codes
RESEARCH
DSF Research Grant Programs
DSF Funded Research
DSF Research Roundtable
Roadmap to a Cure
Treatment Pipeline
GET INVOLVED
EL-PFDD Meeting
Galas & Gatherings
Walks & Races
Steps Toward a Cure
Dash for Dravet
Race for Research
Personal Campaign Pages
Social Media Fundraisers
Amazon Smile
Give Up Your Cup
Awareness Month
Volunteer Network
Planned Giving
Donation Matching
Ciara’s Spirit of Hope Award
ABOUT DSF
About DSF
Our Team
Advisory Boards
Strategic Plan
History & Financials
Our Partners
DSF Merchandise
Media
Dravet Stories (test page)
Mary Anne Meskis
2021-06-14T18:08:35-05:00
These Dravet syndrome families have a lot to share. Read about their journeys and advice.
SHARE YOUR OWN STORY
Meet Wanxuan
Meet Wanxuan
Meet Brian
Meet Brian
Meet Andie
Meet Andie
Meet Kiyonori
Meet Kiyonori
Meet Royall
Meet Royall
Meet Matthew
Meet Matthew
Meet Colton
Meet Colton
Meet Zara
Meet Zara
Meet Will
Meet Will
Meet Berkley
Meet Berkley
Meet Daliyah
Meet Daliyah
Meet Hadley
Meet Hadley
Meet Logan
Meet Logan
Meet Jane
Meet Jane
Meet Jake
Meet Jake
Meet Arianna
Meet Arianna
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