Join us and our VIP expert guests starting May 7th
DSF is hosting an educational webinar series weekly beginning May 7th. Register to join any of our sessions live or check back on this page for the recorded version of each session.
The series features some of the sessions from our 2020 conference agenda. It also includes Understand & Ask sessions where industry partners can share new developments on their products or details on their patient assistance programs with our community. Understand & Ask sessions are a unique opportunity for our community to learn more and ask more questions from industry partners.
| MAY SESSIONS | SPEAKER & PRESENTATION TITLE | |
|---|---|---|
| Th, May 7 3:00pm ET |
Coping w/ COVID-19 Jenny Tischer, DSF Board Member |
WATCH NOW |
| Th, May 14 3:00pm ET |
Everything you want to know about Valtoco (diazepam nasal spray) and cluster seizures Neurelis |
WATCH NOW |
| Fri, May 15 3:00pm ET |
Status Epilepticus Elaine C. Wirrell, M.D., Director of Pediatric Epilepsy at Mayo Clinic |
WATCH NOW |
| Fri, May 22 3:00pm ET |
Telemedicine in Dravet Syndrome: Connecting with Your Specialist Across the Distance Katherine Helbig, MS, CGS & Mark Fitzgerald, MD, PhD Children’s Hospital of Philadelphia |
WATCH NOW |
| Th, May 28 3:00pm ET |
Natural History Study Results and Gait Study Plans Anne Berg, PhD, Ann & Robert H. Lurie Children’s Hospital of Chicago |
WATCH NOW |
| JUNE SESSIONS | SPEAKER & PRESENTATION TITLE | |
|---|---|---|
| Th, June 4 3:00pm ET |
Discovery and development of new therapies using zebrafish Scott Baraban, PhD, Professor of Neurological Surgery, University of California San Francisco |
WATCH NOW |
| Th, June 11 3:00pm ET |
VIP Sibling Kits and Parent Resources Laurie Bailey, Zogenix |
WATCH NOW |
| Th, June 18 3:00pm ET |
The Science of Cannabis and Dravet Syndrome Julie Milder, Greenwich Biosciences |
WATCH NOW |
| Th, June 25 3:00pm ET |
Stiripentol: Patient Access and Reimbursement Biocodex |
WATCH NOW |
| JULY SESSIONS | SPEAKER & PRESENTATION TITLE | |
|---|---|---|
| Th, July 2 3:00pm ET |
The REAL Ketogenic Diet: Tales from 5478 Keto meals Sarah Mullins, MD |
WATCH NOW |
| Th, July 16 3:00pm ET |
FINTEPLA overview and Zogenix Central Patient Services Program Zogenix: David Schaaf, Vice President, Sr. Medical Officer, US |
WATCH NOW |
| Th, July 23 3:00pm ET |
One-time Gene Therapy for Dravet Syndrome: Technology Presentation and Update on Clinical Plans Encoded |
WATCH NOW |
| Th, July 30 3:00pm ET |
The most recent updates for EPX-100 Phase 1 & 2 studies Epygenix Therapeutics, Inc. |
WATCH NOW |
| AUGUST SESSIONS | SPEAKER & PRESENTATION TITLE | |
|---|---|---|
| Th, Aug 13 3:00pm ET |
An Update on Clinical Progress With STK-001 for Dravet Syndrome Stoke Therapeutics |
WATCH NOW |
| Th, Aug 20 3:00pm ET |
Living With Seizure Clusters: How A Rescue Medication May Be Able To Help UCB |
WATCH NOW |
| Tues, Aug 25 2:00pm ET |
Back to School Anxiety in the Dravet Community Patricia Dean, ARNP, CNR, RN, Nicklaus Children’s Hospital |
WATCH NOW |
| Th, Aug 27 3:00pm ET |
Designing Better Clinical Trials – Measuring More Than Seizures Linda Laux, MD, Lurie Children’s Hospital, Chicago, Illinois, DSF Medical Advisory Board Chair |
WATCH NOW |
