Join us and our VIP expert guests starting May 7th

DSF is hosting an educational webinar series weekly beginning May 7th. Register to join any of our sessions live or check back on this page for the recorded version of each session.

The series features some of the sessions from our 2020 conference agenda. It also includes Understand & Ask sessions where industry partners can share new developments on their products or details on their patient assistance programs with our community. Understand & Ask sessions are a unique opportunity for our community to learn more and ask more questions from industry partners.
MAY SESSIONS SPEAKER & PRESENTATION TITLE
Th, May 7
3:00pm ET
Coping w/ COVID-19
Jenny Tischer, DSF Board Member
WATCH NOW
Th, May 14
3:00pm ET
Everything you want to know about Valtoco (diazepam nasal spray) and cluster seizures
Neurelis
WATCH NOW
Fri, May 15
3:00pm ET
Status Epilepticus
Elaine C. Wirrell, M.D., Director of Pediatric Epilepsy at Mayo Clinic
WATCH NOW
Fri, May 22
3:00pm ET
Telemedicine in Dravet Syndrome:  Connecting with Your Specialist Across the Distance
Katherine Helbig, MS, CGS & Mark Fitzgerald, MD, PhD
Children’s Hospital of Philadelphia
WATCH NOW
Th, May 28
3:00pm ET
Natural History Study Results and Gait Study Plans
Anne Berg, PhD, Ann & Robert H. Lurie Children’s Hospital of Chicago
WATCH NOW
JUNE SESSIONS SPEAKER & PRESENTATION TITLE
Th, June 4
3:00pm ET
Discovery and development of new therapies using zebrafish
Scott Baraban, PhD, Professor of Neurological Surgery, University of California San Francisco
WATCH NOW
Th, June 11
3:00pm ET
VIP Sibling Kits and Parent Resources
Laurie Bailey, Zogenix
WATCH NOW
Th, June 18
3:00pm ET
The Science of Cannabis and Dravet Syndrome
Julie Milder, Greenwich Biosciences
WATCH NOW
Th, June 25
3:00pm ET
Stiripentol: Patient Access and Reimbursement
Biocodex
WATCH NOW
JULY SESSIONS SPEAKER & PRESENTATION TITLE
Th, July 2
3:00pm ET
The REAL Ketogenic Diet: Tales from 5478 Keto meals
Sarah Mullins, MD
WATCH NOW
Th, July 16
3:00pm ET
FINTEPLA overview and Zogenix Central Patient Services Program
Zogenix: David Schaaf, Vice President, Sr. Medical Officer, US
WATCH NOW
Th, July 23
3:00pm ET
One-time Gene Therapy for Dravet Syndrome: Technology Presentation and Update on Clinical Plans
Encoded
WATCH NOW
Th, July 30
3:00pm ET
The most recent updates for EPX-100 Phase 1 & 2 studies
Epygenix Therapeutics, Inc.

WATCH NOW
AUGUST SESSIONS SPEAKER & PRESENTATION TITLE
Th, Aug 13
3:00pm ET
An Update on Clinical Progress With STK-001 for Dravet Syndrome
Stoke Therapeutics
WATCH NOW
Th, Aug 20
3:00pm ET
Living With Seizure Clusters: How A Rescue Medication May Be Able To Help
UCB
WATCH NOW
Tues, Aug 25
2:00pm ET
Back to School Anxiety in the Dravet Community
Patricia Dean, ARNP, CNR, RN, Nicklaus Children’s Hospital
WATCH NOW
Th, Aug 27
3:00pm ET
Designing Better Clinical Trials – Measuring More Than Seizures
Linda Laux, MD, Lurie Children’s Hospital, Chicago, Illinois, DSF Medical Advisory Board Chair
WATCH NOW