Join us and our VIP expert guests starting May 7th
DSF is hosting an educational webinar series weekly beginning May 7th. Register to join any of our sessions live or check back on this page for the recorded version of each session.
The series features some of the sessions from our 2020 conference agenda. It also includes Understand & Ask sessions where industry partners can share new developments on their products or details on their patient assistance programs with our community. Understand & Ask sessions are a unique opportunity for our community to learn more and ask more questions from industry partners.
| MAY SESSIONS | SPEAKER & PRESENTATION TITLE | |
|---|---|---|
| Th, May 7 3:00pm ET |
Coping w/ COVID-19 Jenny Tischer, DSF Board Member |
WATCH NOW |
| Th, May 14 3:00pm ET |
Everything you want to know about Valtoco (diazepam nasal spray) and cluster seizures Neurelis |
WATCH NOW |
| Fri, May 15 3:00pm ET |
Status Epilepticus Elaine C. Wirrell, M.D., Director of Pediatric Epilepsy at Mayo Clinic |
WATCH NOW |
| Fri, May 22 3:00pm ET |
Telemedicine in Dravet Syndrome: Connecting with Your Specialist Across the Distance Katherine Helbig, MS, CGS & Mark Fitzgerald, MD, PhD Children’s Hospital of Philadelphia |
WATCH NOW |
| Th, May 28 3:00pm ET |
Natural History Study Results and Gait Study Plans Anne Berg, PhD, Ann & Robert H. Lurie Children’s Hospital of Chicago |
WATCH NOW |
| JUNE SESSIONS | SPEAKER & PRESENTATION TITLE | |
|---|---|---|
| Th, June 4 3:00pm ET |
Discovery and development of new therapies using zebrafish Scott Baraban, PhD, Professor of Neurological Surgery, University of California San Francisco |
WATCH NOW |
| Th, June 11 3:00pm ET |
VIP Sibling Kits and Parent Resources Laurie Bailey, Zogenix |
WATCH NOW |
| Th, June 18 3:00pm ET |
The Science of Cannabis and Dravet Syndrome Julie Milder, Greenwich Biosciences |
WATCH NOW |
| Th, June 25 3:00pm ET |
Stiripentol: Patient Access and Reimbursement Biocodex |
WATCH NOW |
| JULY SESSIONS | SPEAKER & PRESENTATION TITLE | |
|---|---|---|
| Th, July 2 3:00pm ET |
The REAL Ketogenic Diet: Tales from 5478 Keto meals Sarah Mullins, MD |
WATCH NOW |
| Th, July 9 3:00pm ET |
Developing an anti-sense oligonucleotide therapy for Dravet Syndrome Lori Isom, PhD, University of Michigan Medical Center, DSF Scientific Advisory Board |
POSTPONED |
| Th, July 16 3:00pm ET |
FINTEPLA overview and Zogenix Central Patient Services Program Zogenix: David Schaaf, Vice President, Sr. Medical Officer, US |
REGISTER |
| Th, July 23 3:00pm ET |
One-time Gene Therapy for Dravet Syndrome: Technology Presentation and Update on Clinical Plans Encoded |
REGISTER |
| Th, July 30 3:00pm ET |
The most recent updates for EPX-100 Phase 1 & 2 studies Epygenix Therapeutics, Inc. |
REGISTER |
| AUGUST SESSION | SPEAKER & PRESENTATION TITLE | |
|---|---|---|
| Th, August 6 3:00pm ET |
Presentation Title Coming Soon… Linda Laux, MD, Ann and Robert H. Lurie Children’s Hospital, Chicago, Illinois, DSF Medical Advisory Board Chair |
REGISTER |
| Th, August 13 3:00pm ET |
An Update on Clinical Progress With STK-001 for Dravet Syndrome Stoke Therapeutics |
REGISTER |
| Th, August 20 3:00pm ET |
Nayzilam UCB |
REGISTER |
