Join us and our VIP expert guests starting May 7th

DSF is hosting an educational webinar series weekly beginning May 7th. Register to join any of our sessions live or check back on this page for the recorded version of each session.

The series features some of the sessions from our 2020 conference agenda. It also includes Understand & Ask sessions where industry partners can share new developments on their products or details on their patient assistance programs with our community. Understand & Ask sessions are a unique opportunity for our community to learn more and ask more questions from industry partners.

Th, May 28
3:00pm ETNatural History Study RESULTS and Gait Study PLANS
Anne Berg, PhD, Ann & Robert H. Lurie Children’s Hospital of ChicagoREGISTER

MAY SESSIONS SPEAKER & PRESENTATION TITLE
Th, May 7
3:00pm ET
Coping w/ COVID-19
Jenny Tischer, DSF Board Member
WATCH NOW
Th, May 14
3:00pm ET
Everything you want to know about Valtoco (diazepam nasal spray) and cluster seizures
Neurelis
WATCH NOW
Fri, May 15
3:00pm ET
Status Epilepticus
Elaine C. Wirrell, M.D., Director of Pediatric Epilepsy at Mayo Clinic
WATCH NOW
Th, May 21
3:00pm ET
Nayzilam
UCB  **(Rescheduled for August 20th)
RESCHEDULED
Fri, May 22
3:00pm ET
Telemedicine in Dravet Syndrome:  Connecting with Your Specialist Across the Distance
Katherine Helbig, MS, CGS & Mark Fitzgerald, MD, PhD
Children’s Hospital of Philadelphia
WATCH NOW
Th, May 28
3:00pm ET
Natural History Study Results and Gait Study Plans
Anne Berg, PhD, Ann & Robert H. Lurie Children’s Hospital of Chicago
WATCH NOW
JUNE SESSIONS SPEAKER & PRESENTATION TITLE
Th, June 4
3:00pm ET
Discovery and development of new therapies using zebrafish
Scott Baraban, PhD,  Professor of Neurological Surgery, University of California San Francisco
REGISTER
Th, June 11
3:00pm ET
Sibling Kit Webinar
Laurie Bailey, Zogenix
REGISTER
Th, June 18
3:00pm ET
The Science of Cannabis and Dravet Syndrome
Julie Milder, Greenwich Biosciences
REGISTER
Th, June 25
3:00pm ET
Stiripentol: Patient Access and Reimbursement
Biocodex
REGISTER
JULY SESSIONS SPEAKER & PRESENTATION TITLE
Th, July 2
3:00pm ET
The REAL ketogenic diet: Tales from 5478 keto meals
Sarah Mullins
REGISTER
Th, July 9
3:00pm ET
Developing an anti-sense oligonucleotide therapy for Dravet Syndrome
Lori Isom, PhD, University of Michigan Medical Center, DSF Scientific Advisory Board
REGISTER
Th, July 16
3:00pm ET
Zogenix Central Webinar
Zogenix
REGISTER
Th, July 23
3:00pm ET
One-time Gene Therapy for Dravet Syndrome: Technology Presentation and Update on Clinical Plans
Encoded
REGISTER
Th, July 30
3:00pm ET
The most recent updates for EPX-100 Phase 1 & 2 studies
Epygenix Therapeutics, Inc.
REGISTER
AUGUST SESSION SPEAKER & PRESENTATION TITLE
Th, August 6
3:00pm ET
Presentation Title Coming Soon…
Linda Laux, MD, Ann and Robert H. Lurie Children’s Hospital, Chicago, Illinois, DSF Medical Advisory Board Chair
REGISTER
Th, August 13
3:00pm ET
An Update on Clinical Progress With STK-001 for Dravet Syndrome
Stoke Therapeutics
REGISTER
Th, August 20
3:00pm ET
Nayzilam
UCB
REGISTER