Upcoming EL-PFDD Meeting February 3rd!

DONATE
DONATE

Join the EL-PFDD Meeting

By |2022-01-24T05:15:56-05:00January 17th, 2022|Categories: Research / Treatments|Tags: |

Particpate in the EL-PFDD on Dravet Syndrome Externally-Led Patient Focused Drug Development (EL-PFDD) Meeting on Dravet Syndrome EL-PFDD meetings bring together patients and caregivers, US Food and Drug Administration (FDA) representatives, pharmaceutical companies, and doctors who are experts in the particular disease. DSF will be hosting a virtual EL-PFDD on Dravet syndrome on [...]

Community Spotlight

By |2022-01-21T04:08:54-05:00December 16th, 2021|Categories: Events, Our Community|Tags: |

Meet Kendra R. Mulholland, DNP, MSN, APRN-CNP Meet Kendra R. Mulholland, DNP, MSN, APRN-CNP In this Community Spotlight, meet Kendra R. Mulholland, DNP, MSN, APRN-CNP! Dr. Kendra Mulholland is a board-certified Family Nurse Practitioner licensed by the Ohio Board of Nursing and certified by the American Association of Nurse Practitioners. She is the [...]

Community Spotlight

By |2022-01-21T05:02:46-05:00August 16th, 2021|Categories: Our Community|Tags: |

Meet Dan Hartley, his daughter Bri, and McCall! In this Community Spotlight meet Dan Hartley and learn about his new multi-year fundrasising and awareness event – Miles for McCall! Dan Hartley is a 49-year-old, US Navy Veteran and business owner, who is a former semi-professional ultra-runner who has competed in numerous ultramarathons and 100-mile [...]

Miles for McCall

By |2022-01-11T11:32:52-05:00July 9th, 2021|Categories: Decoding Dravet Blog|Tags: |

We are excited to announce a new multi-year fundraising and awareness event - Miles for McCall! Dan Hartley is a 49-year-old, US Navy Veteran and business owner, who is a former semi-professional ultra-runner who has competed in numerous ultramarathons and 100-mile races. Having converted to competitive ultra-cycling in 2020, Dan has a full schedule [...]

Title

Go to Top