The BUTTERFLY Study, conducted by Stoke Therapeutics, is collecting information about the mental development, behavior, movement, communication skills, seizure frequency, and sleep pattern of young people with Dravet syndrome. The BUTTERFLY Study is an observational study, which means that no investigational medications or other treatments will be provided. Participants will continue to receive their usual care, and they will be observed by a team of doctors and nurses over time.
This non-interventional 2 year study, being conducted at approximately 20 sites in the U.S., will observe participants between the ages of 2-18. Participants will have 6 study visits, which may be combined with the participants usual care appointments. The information that is collected from this study may help doctors to investigate potential new treatment options for young people with Dravet syndrome in the future.
If you would like more information about the BUTTERFLY Study, please email BUTTERFLYStudy@iqvia.com.