The Seizure Action Plan Coalition is excited to announce our 2021 Back to School initiatives:

In 2020, the Seizure Action Plan (SAP) Coalition was formed by the Dravet Syndrome Foundation, the LGS Foundation, and the TSC Alliance to fill an unmet need in the epilepsy community. This collaborative effort is designed to raise awareness of what a Seizure Action Plan (SAP) is; the importance of a SAP in the health management of those with epilepsy; and resources to develop an individualized SAP. Special thanks to Neurelis and UCB, who help support the important work of the SAP Coalition through unrestricted educational grants.


ABC to SAP: Why Your Child Needs a Seizure Action Plan 

Plan to join us for this free online educational event on July 28th at 8pm ET to learn about the importance of having a seizure action plan (SAP) in school settings. You will hear about SAPs from a doctor’s point of view, as well as the nursing perspective; how to integrate SAPs with Individualized Education Programs (IEP); and SAPs from the patient perspective. Following the presentations, you will be able to submit questions to our expert panelists:

  • Elaine Wirrell, MD – Director of Pediatric Epilepsy and Professor of Neurology, Mayo Clinic
  • Kathy O’Hara, RN – Child Neurology, Virginia Commonwealth University
  • Shelly Meitzler – Epilepsy Mom and Community Programs Manager, East, TSC Alliance
  • Christie L. Van Cleave – Epilepsy Mom, Epilepsy Awareness Advocate, Business Executive

Virtual Backpack

The SAP Coalition’s Virtual Backpack is a one-stop resource that links out to the information you need to help you prepare for Back to School or IEP meetings. Be sure to start by reviewing our Back-to-School Checklist to assure you have the tools and resources to start the school year right.

Educational Video

This brief educational video presented by Shelly Meitzler, TSC Alliance Community Programs Manager, East, shares pointers on how to discuss seizures with educators, school professionals and classmates. Learn more about SAPs and how to engage and educate the school staff and classmates on your child’s seizure safety needs.