DSF is Hiring a Research Coordinator

We’re Hiring a Research Coordinator!

Are you a scientist who absolutely loves the work that Dravet Syndrome Foundation (DSF) does, but is looking for a change from the lab environment? We have just the opportunity for you! We’re looking for a community-oriented scientist to direct DSF’s research efforts.

DSF is inviting applications for a Research Coordinator. If you’re interested, applications must be received before March 13, 2020. Interviews will take place in March, and an offer will be made in April, if a candidate is selected.


The Research Coordinator is DSF’s key scientific research leader. The Research Coordinator should have an in-depth understanding of the current state of Dravet syndrome, as well as research needs for future investigation. The Research Coordinator is responsible for overseeing all scientific research supported by the organization, including scouting potential research funding applicants and evaluating proposals. Other key duties include research coordination, community outreach, and scientific outreach.

The position reports directly to the Executive Director. The role is part-time and is a remote position. Candidate should be U.S.-based and have an understanding of the U.S. healthcare system.


  • Manage grant program, including: writing requests for proposals, soliciting proposals, responding to inquiries, formatting applications, managing review process, negotiating contracts, tracking progress, maintaining database of publications, updating website, and following up at mid-term and project completion
  • Be aware of current research on Dravet syndrome (DS) and opportunities for DSF support and report to Board of Directors
  • Support clinicians and scientists studying DS through administrative work, highlight compilation, grant or manuscript writing, and coordination of key personnel
  • Communicate with patient community regarding current research and opportunities to participate, including presenting at gatherings and updating website and/or social media with news and advancements
  • Write and submit proposals for presentations and workshops or symposia at professional conferences
  • Attend professional conferences and strengthen relationships with NIH, FDA, and peer organizations
  • Write Research Review synopses for new publications as they come out
  • Work well with staff and Medical and Scientific Advisory Boards to place DS in a position of prominence in clinical and basic science research
  • Assist Scientific Advisory Board and Medical Advisory Board as needed
  • Identify and develop relationships highly qualified labs and researchers who might be interested in partnership or funding opportunities.


  • PhD, MD, or other post-graduate 4 year degree in the science or medical field
  • 2 years grant writing experience
  • 2 years clinical or basic science research experience


  • Knowledge of Dravet syndrome (DS), epilepsy, and/or other rare neurological disease
  • Knowledge of animal models used in DS research
  • Knowledge of WordPress
  • Strong written and oral communications skills, especially related to science communications
  • Strong organizational skills
  • Strong analytical skills
  • Ability to foster a collaborative working environment, encouraging the integration of others’ ideas
  • Demonstrated record of initiative, problem solving, and adaptability
  • Strong listening, communication, and collaboration skills
  • Able to travel 4x/year
  • Understanding of translational research and design and management of clinical studies
  • Understanding of NIH rating scale, peer review, and statistics calculations
  • All members of DSF’s staff are expected to operate as part of a team without the promotion of personal agendas and to exhibit a commitment to the organization. All staff must possess integrity, honesty and a sense of humor

Salary commensurate with experience. Start date is flexible.

To apply, please send a resume and cover letter along with salary history to [email protected], with “Scientific Director” as the subject line.