Parental perception of co-morbidities in children with Dravet syndrome

(Knupp, et al. 2017) This online survey of 202 caregivers measured frequencies of reported comorbidities commonly associated with Dravet syndrome. 99% of caregivers reported an issue with appetite, 82% reported sleep concerns, 75% reported falls and balance concerns, and 69% reported significant concerns with the patient’s attention. Detailed analysis showed that most concerns outpaced the concerns reported by caregivers of neurotypical patients, and that Dravet syndrome affects multiple body systems.

Knupp KG, Scarbro S, Wilkening G, Juarez-Colunga E, Kempe A, Dempsey A. Parental Perception of Comorbidities in Children With Dravet Syndrome. Pediatr Neurol. 2017 Nov;76:60-65. doi: 10.1016/j.pediatrneurol.2017.06.008. Epub 2017 Jun 20. PubMed PMID: 28982531.
By |2018-01-22T15:39:39+00:00November 10th, 2017|Categories: DSF Research Review|Tags: , |

About the Author:

Nicole is a former scientist and science educator who has an 11 year old son with Dravet syndrome and serves on the Board of Directors for the Dravet Syndrome Foundation. She reviews and summarizes research articles, making the content more accessible to those not involved in the scientific community.