DSF has long recognized the financial burden our families face and has offered our Patient Assistance Grant (PAG) program since we were first founded in 2009. While it cannot fulfill all of the financial needs within our community, we hope that it offers a positive avenue to obtain some of the items needed by our patient community that are not covered through commercial insurance or medicaid. Starting each year on March 1st, the DSF PAG program accepts applications for medical equipment, therapy devices, and educational tools. The program runs through December 1st each year or until allocated funds for that cycle are depleted. Caregivers of patients worldwide that are members of the DSF Family Network are eligible to apply for needed equipment and devices of up to $1,500 per year, with a lifetime cap per patient of $5,000. Of important note, the program is need-based, not income-based.
View the full program requirements and access the online application here. Since our inception, we have awarded over $178,000 in grants to families in need.