Please join us in welcoming our two newest board members, Ashley Kerns and Dr. Joseph Sullivan, who officially began their terms on April 1, 2020.
Ashley resides in Westlake, Louisiana with her three children, Michael (age 9), Samuel (age 6), and Katie (age 1). Katie was diagnosed with Dravet syndrome at six months old. DSF and the Dravet community is a source of strength and comfort to her. She is proud to be part of an organization that will work tirelessly at making the world a better place for our children.
Ashley is Vice President of her family’s business, Mike Hooks, LLC, a dredging contractor. She is an active member of several professional organizations and has served on the Board of the Dredging Contractors of America (DCA) since 2011, serving as the first female president of the DCA in 2014, with a consecutive term beginning in 2016. She was the President of the Parent Teacher Organization and a School Board Member at her sons’ school and has held various positions on other local community organizations. In her free time, Ashley enjoys running, mountain biking, hiking, and traveling.
Dr. Sullivan is an Associate Professor of Neurology & Pediatrics, as well as the Director of the UCSF Pediatric Epilepsy Center in San Francisco. As a clinician, Dr. Sullivan sees patients in both the outpatient and inpatient setting and has specific interests in epilepsy surgery, as well as genetic epilepsies such as Dravet syndrome and PCDH19 Girls Clustering Epilepsy.
His research has focused on EEG and clinical phenotyping of these pediatric epilepsies and he was a member of the Epilepsy Phenome/Genome Project EEG core. His recent projects include a collaboration sponsored by DSF using a delphi process to look at the diagnosis and treatment consensus in Dravet syndrome, as well as the principal investigator at UCSF for the Epilepsy Genetics Initiative.
DSF would also like to offer sincere thanks to Nichelle Dominguez for her board service. She stepped down at the end of March to focus on work and family. Nichelle currently lives in Spain with her husband and three children. Her youngest son, Logan, was diagnosed with Dravet syndrome in 2016 when he was almost 2 years old. After his diagnosis, she quickly became involved with DSF and joined the Board of Directors in 2017.
Nichelle has a degree in Business Administration and her background is in marketing and web design. She redesigned our website shortly after volunteering with the organization and is helping with current updates. Her unparalleled experience in digital marketing strategy and website development has significantly helped us increase our online visibility and reach to all stakeholders in the Dravet syndrome community. She plans to continue to volunteer for DSF as her schedule allows, and will remain a vital part of the organization.