Please join us in welcoming our newest board member, Ross Nicholas, who officially began his term on April 15, 2021.
Ross lives in Atlanta, GA with his wife Polly and their three children Millie, Finn, and Henry – who has Dravet syndrome.
Henry was diagnosed in March 2008. He had his first seizure at 3 months, lasting over an hour. By his second birthday, Henry had spent over 70 days in the hospital: often in pediatric intensive care after prolonged seizures. Henry was so little, and Ross and his family had no idea how to help. Fortunately, the family was able to connect with a wonderful group of parents, doctors, and other caregivers to work together and treat the symptoms of the disease.
Every rare disease needs a champion and DSF is a great one. It is because Ross has benefitted from the past efforts that he feels honored to serve where he can.
Ross is a business consultant, and he applies this broad set of business, operational, and personal experiences to his role on the board.
Ross describes his life as messy and full. In his free time, he enjoys chasing his children, squeezing in a workout, run, or a round of golf when he can.