Epilepsy is one of the least understood of all neurological diseases, and yet it is the fourth most common neurological condition in the US. We know that one in 26 people will be diagnosed with epilepsy and that over 65M people worldwide suffer from epilepsy. One-third of those with epilepsy experience uncontrollable seizures. And, as the Dravet community knows all too well, epilepsy can be fatal. We need early diagnosis, more research, and better treatment options.

This Sunday, November 1st, kicks off National Epilepsy Awareness Month in the US. DSF uses this opportunity each year to raise awareness of Dravet syndrome and epilepsy in general. There are many easy ways that you can get involved.

Ways you can help spread awareness of Dravet syndrome this November:

  • Attend this year’s virtual Epilepsy Awareness Day at Disneyland on November 2-3 to connect with others in the epilepsy community. This year will feature educational sessions on November 3rd. You can learn more and register at: https://epilepsyawarenessday.org/
  • Share your child’s story with DSF for inclusion on our website, and then share that post on your social media channels.
  • Sign up for our virtual fundraising event, Dash for Dravet, and share your fundraising page throughout the month to not only raise awareness, but also to raise funds for DSF’s research and advocacy programs.
  • If you are in the position to, honor someone you love with a donation to DSF. Every dollar makes a difference to improving the lives of those living with Dravet syndrome.
  • Encourage your friends and family to make a difference as well! Share this blog post with them so they can find a way to help.

The Dravet syndrome community has seen success in the last 10 years with new treatments and close to $5M in Dravet-specific research grants awarded because our efforts have been patient-driven and prioritized by our community. Whatever you can do to help in any capacity will continue to allow DSF to push our mission forward and find more answers and a better quality of life for our loved ones. Thank you for your continued support!