This #MemberMonday meet Ryan and his mom, Tina McDermott.
Tina is an active member in the Dravet syndrome community. She serves as a DSF Family Ambassador in the midwest region and also as a DSF Social Ambassador. Her youngest son, Ryan, was diagnosed with Dravet syndrome in 2012 at the age of 6.
During the COVID19 pandemic, Tina made a goal to teach Ryan to say “mama” or “mom.” After working every day and night for nearly 10 weeks, Ryan finally said his first word: Mom.
A local television station learned of Ryan’s big accomplishment and featured Ryan and Tina on the nightly news. You can watch the news clip and hear Ryan say, “Mom” here.