“I first learned of the Dravet Syndrome Foundation (DSF) soon after my granddaughter Anna, was diagnosed in May 2018. She was just over 7 months old at that time. None of us knew anything about Dravet. My son Andrew and his wife Kim soon connected with DSF Executive Director Mary Anne, and with her help they connected with fellow Dravet families and the DSF community online. In wanting to do more to help Anna and her parents I turned to learning about Dravet Syndrome at a genetic level, various therapeutic options and the pipeline for new drugs and gene therapy. It did not take me long to embrace the DSF mission, and with the help of others in our family we started a fundraising campaign.
Our family goal is to raise $1 million for DSF. We got off great start in 2018 and look forward to reaching our goal in the next 3 to 5 years. In late 2018 I was invited to join the DSF Board of Directors and was happy to accept with my term starting on March 1, 2019.
I live in Bannockburn, Illinois with my wife Pat. We have three adult children, Andrew mentioned above, as well as Tommy and Erika. We have another teenage granddaughter Piper. She and Tommy live in Lexington, South Carolina and Erika and her husband Marc are not far from Andrew and Kim in Chicago. I have been fortunate to have had leadership roles at both large and small companies in the pharmaceutical industry over the last 40 years. I earned my Ph.D. from University of Minnesota, and a B.S. and M.S. from the University of Missouri.
I want to use my position as a board member to apply my experience and know-how to help further the goals of the foundation for the benefit of all Dravet patients and families.”