This #MemberMonday meet Parent Ambassador Beth Fox! Beth has been an active member of #teamDSF for several years hosting fundraisers and supporting community members and officially joined our team as one of inaugural Parent Ambassadors in 2017 when we launched the DSF Family Network.
Beth lives in Branford, CT with her husband Matt and their daughter Brenna. Brenna was diagnosed with Dravet syndrome in 2011 when she was 2 1⁄2 years old. Beth became a stay at home mom in 2010 and struggled for several years with the isolation and constant fear of when the next seizure would strike. She now considers herself a pro (with anxiety) and wants to help others by bringing families together to share ideas and provide support for each other on this challenging journey.
Beth is originally from a small town in northeast Pennsylvania. She has a B.S. in Retail Management and worked in the supermarket industry for 17 years. Over the years (BB – Before Brenna) she has lived in RI, NJ and MD and worked in NY.
Beth attended her first Dravet Syndrome Family & Professional Conference in 2016 in Miami and had the honor of meeting Dr. Dravet herself. She has attended the past 4 annual galas and was on the planning committee in 2016. She hosts an annual fundraiser Boogie with Brenna to benefit DSF and has raised over $40,000 in the past 4 years. Beth also runs a local support group for adults and parents with children living with epilepsy through Epilepsy Foundation CT.
Beth is honored to be a parent ambassador and a part of #teamDSF. She hopes and prays that one day a cure will be found for our precious warriors.