This #MemberMonday meet Mountain Region Parent Ambassador Shawna Davis!
Shawna was born and raised in Texas and currently resides in the Fort Worth area with her husband, Jeff, and their two daughters, Kendall and Karley. Karley is their youngest and who diagnosed with Dravet syndrome shortly after her first birthday. Read all about Karley here.
Shawna, is a stay-at-home mom who devotes all her time and energy taking care of her family while researching treatments and therapies to help give Karley the best quality of life possible. She and her husband participate in hosting the Double Down for Dravet annual fundraising event in Frisco, Texas and took an active role in advocacy efforts that ultimately lead to enactment of the Texas Compassionate Use Act by the Texas Legislature in 2015. In her free time, Shawna has taken up her love for photography and is working on starting her own business.
The Dravet Syndrome Foundation is very important to the Davis Family. As difficult as it was to find out Karley’s diagnosis of Dravet, finding hope through others who share the same journey has been a blessing. Her hopes are to help advance specific research for Dravet syndrome and to be a supportive resource for newly diagnosed families.