Noah’s brother, Zack, has Dravet syndrome and requires full care for just about everything. Zach shares, “This has affected my family’s life in both small and big ways. Small as in tucking our chairs all the way in when eating, so Zack won’t hurt himself. Big as in emergency ambulance calls and hospital stays for weeks and even month on end. However, this life-changing disease has also allowed our family to spend more time together.”
Noah set a hefty goal of raising $25,000 for DSF’s Virtual Steps Toward a Cure event to help families in need of additional support. We are thrilled to share that The Zack Pack raised $24,760.07 and counting!
From the entire Dravet community, thank you Noah and The Zack Pack for raising funds and spreading awareness of Dravet syndrome.