Jane lives in Tulsa, Oklahoma and love music and going to the lake. She loves books and dancing and hugging everyone!
When did Jane’s seizures begin?
5 1/2 months was her first seizure. We were told it was probably a one time thing but then it happened again… and again… and again. We finally had genetic testing done the next year and got the results back 1 year and 3 months after her first seizure.
What is your family’s hope for your future? For the Dravet community?
I hope the right therapy will cure her before her disease progresses too far or before irreparable damage is done.
What advice do you have for newly diagnosed families?
Read about all the new treatments, all the new therapies to give yourself hope. Reach out to the DSF Facebook community and other families.