About Jake

Jake lives near Boston with his mom and dad. He has an older brother who lives and works in Boston. Jake is 25 years old and is in a home based program. He loves to be outside and loves visits from family and friends.

When did Jake’s seizures begin?

Seizures began at 7 months. Diagnosis at 10 years, reconfirmed at age 19.

What is your family’s hope for your future? For the Dravet community?

For Jake – to always feel loved, happy, safe and at peace. For the Dravet community – a cure.

What advice do you have for newly diagnosed families?

One day at a time. You will adjust over time and learn to live well with and despite Dravet.