This year, we are encouraging our families and supporters to help us Fight Dravet by participating in a virtual fundraising event through June 30th
You can participate in our Join the Fight Challenge by registering for free at www.fightdravet.org. When you set up your personal campaign page, be sure to tell your story about your loved one with Dravet syndrome. While this is a fundraising challenge, we also want to take advantage of the opportunity to raise awareness and let others know what it is like to live with Dravet syndrome and the many unmet needs of our patient community. Once your page is done, you can share it via email and on all of your social media accounts. Be sure to tag DSF and use the hashtag, #fightdravet.
We have also put together a Dravet Awareness Fact Challenge board. This board lists 12 facts about Dravet syndrome. You can share the challenge board, along with the link to your fundraising page, to educate about the many complexities of living with this disease, and encourage donors to sponsor at one of the accompanying donation amounts. If you get donations for each square – or raise $415 or more – you are eligible to receive a DSF swag bag and t-shirt.
Your participation will help us continue to raise awareness and important funding for research and advocacy programs. Please join DSF and Join the Fight this June! #fightdravet
