Today kicks off Epilepsy Awareness Month and we are excited to start it by sharing Jackson’s Song with our community!
Jackson’s Song was written and recorded by Nashville Artist Sami Lin in honor of Jackson Aaron and his family and their day to day struggles of living with Dravet syndrome. Jackson’s parents (Jeff and Karina) work with Sami Lin’s father (Scott) in the Chicago Police Department’s 16th District and their families have become good friends. After meeting Jackson and talking with his parents and siblings, Sami Lin wrote Jackson’s Song to capture their love of Jackson. Jackson’s Song has now come to symbolize the Aaron Family’s journey to beat this terrible disease, and it’s message truly resonates with the Dravet parent community.
Sami Lin is a singer, songwriter, and performer from Chicago who is currently a songwriting student at Belmont University in Nashville, Tennessee. She has been endorsed by Daisy Rock Girl Guitars and is a member of the Belmont University Songwriters Association. Sami Lin’s latest release, Crossroads, has been featured on the Big 95.5 Backyard Country radio show in Chicago and on iHeartradio. She has multiple singles, including Jackson’s Song, available on iTunes, Spotify and other digital platforms.
Jackson had his first seizure at 2 months old, lasting more than 40 minutes. Three weeks later, he had his second seizure which lasted 30 minutes. This started the Aaron family on their path to get Jackson properly diagnosed and treated – a path that took nearly 2 years before he was diagnosed with Dravet syndrome. He is a beautiful, loving boy who strives to lead a “normal” life like other little boys. His greatest joy comes from playing with his Mom, Dad, his brother, and his three sisters. However, don’t bother calling him Jackson, as he’ll only respond to “Spiderman”. This is fitting, as to his family, he is truly a Superhero.
Jeff and Karina have held several fundraising events to help raise awareness and funds for research, including Jeff’s participation in his 6th Ironman event this year and an event at the Iron Horse Ale House in Chicago that included a live performance by Sami Lin of Jackson’s Song.
Make sure to tune in to our Facebook Page today (11/1/19) at 12:00pm ET to hear Sami Lin’s beautiful song and Jackson’s story. You can also watch Jackson’s Song on Sami Lin’s Youtube Channel.
We encourage you to share Jackson’s Song to help raise awareness of Dravet syndrome this November for Epilepsy Awareness Month!