We understand that families and friends want to make a difference in the lives of patients and families living with Dravet syndrome, but often time and resources are limited. Below are ideas that make it easy for you to find a way to help our community.
Your support helps bring us closer to a cure!
WAYS TO HELP
Some areas of expertise where you may be able to help include:
- Annual Report Design & Production
- Newsletter Design & Production
- Video Production
- Brochure Design & Production
- PR Projects
- Social Media
If you are interested in volunteering, email Mary Anne
We’re thrilled to announce a new partnership that will bring our resources in front of The Mighty‘s wide-reaching readership. We will now have a growing home page on The Mighty and appear on many stories on the site.
The Mighty is a story-based health community focused on improving the lives of people facing disease, disorder, mental illness and disability. More than half of Americans are facing serious health conditions or medical issues. They want more than information. They want to be inspired. The Mighty publishes real stories about real people facing real challenges.
We’re dedicated to helping people with Dravet syndrome in their lives. With this partnership, we’ll be able to help even more people.
We encourage you to submit a story to The Mighty and make your voice heard.
Our wishlist includes:
- Gift cards to offest the cost of office expenses: Staples, Office Max, Wal-Mart, Target, etc.
- Visa or American Express gift cards for travel
- Postage Stamps
- Airline miles for travel
- Hotel points for travel
If you are interested in donating, please email Amanda
Many companies offer matching gift programs through which they match the charitable contributions made by their employees. Corporate matching gifts can double or sometimes triple your contribution to DSF. Download our list of corporations that offer charitable gift matching or check with your Human Resources department. If your employer offers this benefit, your Human Resources department will be able to provide you with a matching gift form. Complete this form and mail or email it to:
Dravet Syndrome Foundation
Corporate Matching Program
PO Box 3026
Cherry Hill, NJ 08034
We will verify receipt of your gift and return the form to your company, which will then issue a matching gift contribution to DSF. DSF is registered as a tax-exempt public charity by the Internal Revenue Service under Section 501(c)(3). Our tax identification number is 27-0924627.
Join the DSF E-Wareness Campaign. Using social media, we can raise awareness of Dravet syndrome and related epilepsies, while increasing funding for research! Click here to Download our Project E-Wareness Info Sheet
Planned Giving provides donors with the ability to support nonprofit associations and charities by arranging for gifts to be made through financial or estate planning. This practice enables donors to make charitable gifts now and establishes provisions for gifts that will continue after their lifetimes. Planned Giving also provides an avenue for supporters to make even larger donations than they could during their lifetimes. This approach provides financial and tax benefits to both donors and their heirs. Email Mary Anne for more information.
DSF hosts a private support group for parents on FB. If you would like to connect with other families locally and from around the world, this is a great place to ask questions about living with Dravet syndrome. DSF has also recently started a Dravet Family Network for parents (US only) that also includes regional support groups and Ambassadors. The purpose of these groups will be to share local updates regarding doctors and therapy options, events & fundraisers and to be able to share knowledge about the resources available in your state. DSF is also planning to host an annual “Day for Dravet” in each region with educational seminars and meetups for families.
When you shop at smile.amazon.com you’ll find the exact same low prices, vast selection and convenient shopping experience as Amazon.com, with the added bonus that Amazon will donate a portion of the purchase price to your favorite charitable organization.
iGive.com is the first online shopping mall where a portion of each purchase is donated to your favorite cause. Established in 1997 for one purpose: to turn everyday online shopping into donations for worthy causes, at no cost to shoppers or the causes they support. The iGive.com Mall features over 750 top-notch online stores where up to 26% of each purchase is donated to your cause. Go to iGive.com and start shopping. Be sure to choose Dravet Syndrome Foundation as the recipient organization.
GoodSearch is the search engine with a unique social mission. They donate 50% of advertising revenue to the nonprofits and schools selected by its users. GoodSearch is powered by Yahoo, so you get the same great search results. Simply go to GoodSearch.com to start searching today. Be sure to choose Dravet Syndrome Foundation as the recipient organization.
In lieu of wedding favors, consider making a donation in your guests’ honor. We can provide a digital download of a customized donation card, or tented table card for your wedding – just download, print, and share. Please allow 2 weeks time for your card design. If you are interested in doing a Wedding Favor Donation, email Mary Anne