We understand that families and friends want to make a difference in the lives of patients and families living with Dravet syndrome, but often time and resources are limited. Below are ideas that make it easy for you to find a way to help our community.
Your support helps bring us closer to a cure!
WAYS TO HELP
Interested in getting involved in DSF, but not sure where to start? Curious as to how your skills and strengths can be used to make a positive impact on the Dravet community?
We’re thrilled to announce a new partnership that will bring our resources in front of The Mighty‘s wide-reaching readership. We will now have a growing home page on The Mighty and appear on many stories on the site.
The Mighty is a story-based health community focused on improving the lives of people facing disease, disorder, mental illness and disability. More than half of Americans are facing serious health conditions or medical issues. They want more than information. They want to be inspired. The Mighty publishes real stories about real people facing real challenges.
We’re dedicated to helping people with Dravet syndrome in their lives. With this partnership, we’ll be able to help even more people.
We encourage you to submit a story to The Mighty and make your voice heard.
Join the DSF E-Wareness Campaign. Follow us and share our posts on social media to help raise awareness of Dravet syndrome!
DSF hosts a private support group for parents on FB. If you would like to connect with other families locally and from around the world, this is a great place to ask questions about living with Dravet syndrome. DSF also runs the DSF Family Network for parents (US only) that also includes regional support groups and Ambassadors. These regional groups share updates regarding local doctors and therapy options, events & fundraisers, and a chance to share knowledge about the resources available in your state. As part of the DSF Family network, we offer an annual Day for Dravet workshop in each region with educational seminars and meetups for families.
When you shop at smile.amazon.com you’ll find the exact same low prices, vast selection and convenient shopping experience as Amazon.com, with the added bonus that Amazon will donate a portion of the purchase price to your favorite charitable organization.
iGive.com is the first online shopping mall where a portion of each purchase is donated to your favorite cause. The iGive.com Mall features over 750 top-notch online stores where up to 26% of each purchase is donated to your cause. Go to iGive.com and start shopping. Be sure to choose Dravet Syndrome Foundation as the recipient organization.
GoodSearch is the search engine with a unique social mission. They donate 50% of advertising revenue to the nonprofits and schools selected by its users. GoodSearch is powered by Yahoo, so you get the same great search results. Simply go to GoodSearch.com to start searching today. Be sure to choose Dravet Syndrome Foundation as the recipient organization.
In lieu of wedding favors, consider making a donation in your guests’ honor. We can provide a digital download of a customized donation card, or tented table card for your wedding – just download, print, and share. Please allow 1-2 weeks time for your card design. Email Mary Anne with any questions.