NY5thgen is a car club, made up of mainly camaro owners in the NY area. Every summer for the past 6 years we’ve held a BBQ/Fundraiser for our members. We auction off various items, all proceeds go to the DSF.
The Goddard School & its parent community organized a fundraiser in honor of Ella. Her sister, Clara, is in the Pre-K classroom and the school wanted to help raise awareness and funds for the Dravet Syndrome Foundation. Over a two week period, they sold butterflies of all colors, which were hung in their foyer as donations were made. Each colored butterfly represented a certain amount donated. To thank the generous families who contributed to the cause, they also had a meet and greet with refreshments on May 13th, so that families could meet Ella, Clara, and their family. We truly appreciate the support of the Goddard School and their families – thank you [...]
We began having these benefits four years ago to raise awareness in our community, and to do everything we can to contribute to research so that a cure can be found for our son. He is the most important thing in our lives, and we will do anything we can to help give him a better way of life. The entire community is involved in the event, whether it is through contributing auction items, food for the event, or coming out the day of to show their support. Each year we sell brisket and link plate lunches, have a live auction, live music and more. Everyone has a great time and can’t wait for [...]
Thrivent Financial’s Employee Volunteer Team held a Misfit Gift sale on January 19, 2015. They sold new, unwanted gifts items from the holidays, donated by their corporate employees. Sales proceeds and cash contributions totaled $226.33 from the sale, and were matched by Thrivent Financial, with a check for $452.66 being sent to the Dravet Syndrome Foundation in memory of Ruby Hanson. Thank you to everyone at Thrivent for supporting our community and keeping Ruby’s memory alive.
Great friends of Logan's family, the Seabolt's hosted a lemonade stand called "Lemonade for Logan". In just a few hours of hard work selling cookies and lemonade, these 4 amazing kids raised $630 for the Dravet Syndrome Foundation to help find a cure for Logan and other kids battling Dravet syndrome and Epilepsy. A big thank you to all of the policy, firefighters and honor guard that all came out to support this great cause!