Making a Difference for Dravet2016-12-15T17:59:02-05:00

Making a Difference for Dravet

By hosting a fundraising event to benefit DSF you can raise funds for research, while increasing awareness of Dravet syndrome and associated childhood epilepsies.

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In Honor of Tyler – Bridge City, TX

We began having these benefits four years ago to raise awareness in our community, and to do everything we can to contribute to research so that a cure can be found for our son. He is the most important thing in our lives, and we will do anything we can to help give him a better way of life. The entire community is involved in the event, whether it is through contributing auction items, food for the event, or coming out the day of to show their support. Each year we sell brisket and link plate lunches, have a live auction, live music and more. Everyone has a great time and can’t wait for [...]

Lemonade for Logan

Great friends of Logan's family, the Seabolt's hosted a lemonade stand called "Lemonade for Logan". In just a few hours of hard work selling cookies and lemonade, these 4 amazing kids raised $630 for the Dravet Syndrome Foundation to help find a cure for Logan and other kids battling Dravet syndrome and Epilepsy. A big thank you to all of the policy, firefighters and honor guard that all came out to support this great cause!

In Honor of Ruby

Thrivent Financial’s Employee Volunteer Team held a Misfit Gift sale on January 19, 2015. They sold new, unwanted gifts items from the holidays, donated by their corporate employees.  Sales proceeds and cash contributions totaled $226.33 from the sale, and were matched by Thrivent Financial, with a check for $452.66 being sent to the Dravet Syndrome Foundation in memory of Ruby Hanson. Thank you to everyone at Thrivent for supporting our community and keeping Ruby’s memory alive.

In Honor of Trey – Frankfort, IL

Suttondale Subdivision in Frankfort, IL organized the Annual Subdivision Charity Softball Challenge. Trey Gryga is an 11 year old boy who lives in the Suttondale Subdivision and unfortunately was diagnosed with Dravet when he was 3 months old. We decided to make the Dravet Syndrome Foundation the beneficiary for our charity event. With lots of help from local businesses, neighbors, family and friends we were able to organize an event that raised over $5400.00

In Honor of Paige

Special thanks to Brian Frate for running a 2nd marathon to raise awareness of Dravet syndrome in honor of his daughter, Paige. His efforts over the last two years have raised over $2800 for DSF!!!