Making a Difference for Dravet2016-12-15T17:59:02+00:00

Making a Difference for Dravet

By hosting a fundraising event to benefit DSF you can raise funds for research, while increasing awareness of Dravet syndrome and associated childhood epilepsies.

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In Honor of Trey – Frankfort, IL

Suttondale Subdivision in Frankfort, IL organized the Annual Subdivision Charity Softball Challenge. Trey Gryga is an 11 year old boy who lives in the Suttondale Subdivision and unfortunately was diagnosed with Dravet when he was 3 months old. We decided to make the Dravet Syndrome Foundation the beneficiary for our charity event. With lots of help from local businesses, neighbors, family and friends we were able to organize an event that raised over $5400.00

NY5thgen – New York

NY5thgen is a car club, made up of mainly camaro owners in the NY area. Every summer for the past 6 years we’ve held a BBQ/Fundraiser for our members. We auction off various items, all proceeds go to the DSF.

In Honor of Hayden

In honor of Hayden, his parents recently hosted a t-shirt fundraiser, with proceeds benefiting DSF. Thanks to an outpouring of support from family and friends, they raised almost $3,000! Thank you to Hayden, his parents and their amazing supporters!

In Honor of Ella – Wilton, CT

The Goddard School & its parent community organized a fundraiser in honor of Ella. Her sister, Clara, is in the Pre-K classroom and the school wanted to help raise awareness and funds for the Dravet Syndrome Foundation. Over a two week period, they sold butterflies of all colors, which were hung in their foyer as donations were made. Each colored butterfly represented a certain amount donated. To thank the generous families who contributed to the cause, they also had a meet and greet with refreshments on May 13th, so that families could meet Ella, Clara, and their family. We truly appreciate the support of the Goddard School and their families – thank you [...]

In Honor of Tyler – Bridge City, TX

We began having these benefits four years ago to raise awareness in our community, and to do everything we can to contribute to research so that a cure can be found for our son. He is the most important thing in our lives, and we will do anything we can to help give him a better way of life. The entire community is involved in the event, whether it is through contributing auction items, food for the event, or coming out the day of to show their support. Each year we sell brisket and link plate lunches, have a live auction, live music and more. Everyone has a great time and can’t wait for [...]