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April 2017
Make sure to Save the Date - Thursday, April 6, 2017 We hope you will join us in 2017 as the Butterfly Bash metamorphosizes into DSF's City Bash! This special evening serves as DSF's signature fundraising event and we are adding exciting new elements to make this year's the most memorable event yet. Tickets are now [...]
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The Nashville Rock n Roll Marathon Saturday, April 29th, 2017 Team members agree to raise a minimum of $500 for DSF. You train for the race and raise money for Dravet Syndrome Foundation. We provide the resources you need to cross the finish line. You’ll raise awareness and critical funding that will help change the lives [...]
Find out moreJuly 2017
The San Francisco 1st Half Marathon – Sunday, July 23rd, 2017 Team members agree to raise a minimum of $500 for DSF. You train for the race and raise money for Dravet Syndrome Foundation. We provide the resources you need to cross the finish line. You’ll raise awareness and critical funding that will help change the lives [...]
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Camp Day for Dravet Tabernacle, NJ - July 29th Join us at DSF Camp Day for Dravet on Saturday, July 29th. Proceeds benefit Dravet Syndrome Foundation whose mission is to raise money for research into Dravet syndrome and related childhood epilepsies. This fun, family-friendly event includes canoeing, swimming, zip-lining, a rock wall and more! It will be [...]
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Please join us on July 29th at Cow Bayou Marina in Bridge City, Texas for our 5th annual Tyler's BBQ Bash. There will be a Live Auction, Raffle and Live Music! Plate lunches are $10.00 each Serving from 10:00 am - 5:00 pm
Find out moreAugust 2017
Join us on Saturday, August 19th for Gather Together for Dravet Let's spend an evening together with dinner, drinks, dancing & fundraising! The event will take place at The Madison Event Center in Covington, Kentucky. $50 per person Includes: hors d'oeuvres, dinner and drinks Business attire is suggested ~give so others can live~ Special thanks [...]
Find out moreSeptember 2017
DAY OF DRAVET - MIDWEST - September 16, 2017 Zoofari Conference Center - Milwaukee Zoo, Milwaukee, WI Click here to Register Dravet Syndrome Foundation’s (DSF) Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one another, and be a part of [...]
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DAY OF DRAVET - MOUNTAIN - September 23, 2017 The Antlers Hotel - Colorado Springs, CO Click here to Register Dravet Syndrome Foundation’s (DSF) Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one another, and be a part of a [...]
Find out moreOctober 2017
Rock ‘n’ Roll St. Louis proudly boasts that it is one of the most scenic courses in the Rock ‘n’ Roll family, with start and finish line views of the famous Gateway Arch, a historic downtown and picturesque neighborhoods framed by all the colors of foliage in the fall. Join us in St. Louis in 2017 [...]
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Join us on October 21st for Steps Toward A Cure: Arnold, MO. This family-friendly event will include a 5K fun run, face painting, refreshments and a raffle! Run, walk or take a stroll, feel free to wear your Halloween costumes and let's SCARE AWAY DRAVET!
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DAY OF DRAVET - NORTHEAST - October 21, 2017 Sheraton Bucks County - Langhorne, PA Click here to Register Dravet Syndrome Foundation’s (DSF) Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one another, and be a part of a DSF’s [...]
Find out more"Scare Away Dravet" : Halloween 5K Join us for our 2nd annual Dravet Syndrome 5K fundraiser and run for "their lives"! Let's find a cure for this catastrophic form of Epilepsy and put Dravet Syndrome to rest. This year we will be dressing up and trick or treating. Come ready for the costume contest and enjoy [...]
Find out moreNovember 2017
DAY OF DRAVET - SOUTHEAST - November 18, 2017 Wyndham Orlando - Orlando, FL Click here to Register Dravet Syndrome Foundation’s (DSF) Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one another, and be a part of a DSF’s shared [...]
Find out moreDecember 2017
DAY OF DRAVET - WEST COAST - October 14, 2017 UCSF - Mission Hall - San Francisco, CA Click here to Register Dravet Syndrome Foundation’s (DSF) Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one another, and be a part [...]
Find out moreMarch 2018
Treasure Coast Marathon Stuart, Florida ~ March 4th, 2018 Register for the race and then register to run for our kids! Team members agree to raise a minimum of $250 for DSF and we will mail you your race shirt. You train for the race and raise money for the Dravet Syndrome Foundation. We provide the [...]
Find out moreApril 2018
Make sure to Save the Date - Thursday, April 26, 2018 A Night of Food, Fun & Fundraising! Join us at The McKittrick Hotel in NYC for DSF's signature fundraising event! We are adding exciting new elements to make this year's the most memorable event yet. Tickets are now available. Sponsorship levels and benefits are [...]
Find out moreNashville Rock N Roll Marathon Series Saturday, April 28th, 2018 Race For Research! Team members agree to raise a minimum of $250 for DSF. You train for the race and raise money for Dravet Syndrome Foundation. We provide the resources you need to cross the finish line. You’ll raise awareness and critical funding that will help [...]
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Burn for Brax May 19th, 2018 The 3rd annual Burn for Brax Burn-a-thon is BACK! (three 45 minute sessions) ~Come for one or more sessions with your registration~
Find out moreJune 2018
Seattle Rock N Roll Marathon Series Team members agree to raise a minimum of $250 for DSF. We will mail you a DSF race shirt for race day! You train for the race and raise money for Dravet Syndrome Foundation. We provide the resources you need to cross the finish line. You’ll raise awareness and [...]
Find out moreJuly 2018
DSF is pleased to announce that our 2018 conference will take place on July 19-22, 2018 in collaboration with Children's Hospital Colorado in Aurora, Colorado. Conference will include family and professional sessions, DSF Super Sibling camp, and family events. Conference agenda, speakers and additional details are available at www.dsfconference.org REGISTER TODAY! Special thanks to Dr. Kelly [...]
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DSF is excited to announce our very 1st butterfly release! Butterflies ~ $25 each (no limit to the number you can purchase) Honoring survivors, celebrating hope & remembering those who have passed. This release will take place the last day of our 2018 Conference, July 22nd Children's Hospital Colorado 13123 E. 16th Ave Aurora, CO 80045 [...]
Find out moreSeptember 2018
Dravet Syndrome Foundation’s (DSF) Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one another, and be a part of a DSF’s shared vision for a better outcome for those affected by Dravet syndrome. Our Midwest Region’s event takes place on [...]
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Join us at the 6th annual Double Down for Dravet on Saturday, September 22nd! Enjoy three hours of Casino games by Aces Wild Casino, as well as hors d' oeuvres, dinner, beer, wine, a silent auction and Bid for a Cure! The event will take place at Toyota Stadium in Frisco, Texas. Tickets, sponsorships and event [...]
Find out moreDravet Syndrome Foundation’s (DSF) Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one another, and be a part of a DSF’s shared vision for a better outcome for those affected by Dravet syndrome. Our Northeast Region’s event takes place on [...]
Find out moreOctober 2018
Dravet Syndrome Foundation’s (DSF) Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one another, and be a part of a DSF’s shared vision for a better outcome for those affected by Dravet syndrome. Our West Coast Region’s event takes place [...]
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