Boogie with Brenna

St. Therese's Church 105 Leetes Island Road, Branford

Please join us on Saturday, November 3rd for Boogie with Brenna. This family friendly event will include crafts, dance performances, a silent auction and more!   St. Therese's Church 105 Leetes Island Road Branford, CT  06405   Admission : $15 Families of 4 or more: $50 for all Children 3 & under are FREE! Individual with [...]

2018 Luck Be Alexis Tonight

Penthouse at CW Moore Plaza 250 5th Street, Boise

There's no place like...   LUCK BE ALEXIS TONIGHT Saturday, November 17, 2018 The Penthouse at CW Moore Plaza 250 South 5th Street Boise, Idaho   A casino night fundraiser benefiting the Dravet Syndrome Foundation   This year's theme: The Wizard of Oz   6:30pm-11:00pm Beer ~ Wine ~ Heavy Hors D'oeuvres Casino Tables - Craps [...]

$50.00

Hop to a Cure – Conshohocken, PA

Chatter Splatter 1030 Conshohocken Rd, Conshohocken

HOP TO A CURE ~ in honor of Penny Fry Please join us on April 13th at: Chatter Splatter 1030 Conshohocken Rd Conshohocken, PA 19428 9:30 am - 12:30 pm Admission: Adults ~ $10 Children ~ $15 (over 9 months of age) Meet the Easter bunny, enjoy face painting, refreshments, professional photography and more! Bring your [...]

City Bash

Gramercy Farmer and The Fish 245 Park Avenue South, New York

Purple for Penny – Happy Hour for Dravet

Raise New York 416 Third Avenue, New York

Join us at Raise New York on Friday, May 10th from 7-9 PM for the 3rd Annual Purple for Penny Open Bar Fundraiser as we raise money and awareness for Purple for Penny and the Dravet Syndrome Foundation! As many of you know, our friends Greg and Wendy have a daughter, Penny, who is almost 4 [...]

$45

Totem to Totem 1/2 Marathon

Rotary Beach Ketchikan

Totem to Totem Half Marathon May 11th, 2019 Register for the race and then register to run for our kids! Team members agree to raise a minimum of $300 for DSF and we will mail you your race shirt.  You train for the race and raise money for the Dravet Syndrome Foundation.  We provide the resources [...]

Double Down Beantown

Grant Park Chicago

Double Down Beantown Boston Bets Against Dravet   Friday, June 14, 2019 6:30pm-10:30pm $100 per person - advanced ticket purchase suggested Cocktail or business casual attire The evening includes dinner, drinks, casino games and a silent auction   www.doubledownbeantown.org

$100

Goin’ For Owen ~ 5k for Dravet

Ann Morrison Park, Old Timer's Shelter 1130 W Royal Blvd, Boise

  This 5K family-fun run/walk is in honor of Owen Watson and will be held at:Ann Morrison Park Old Timer's Shelter 1130 W Royal Blvd Boise, ID 83706The event will include a raffle and a silent auction!Registration starts : 4:30 PM 5K Fun Run / Walk starts : 5:30 PM Adult - $35 Child - $20 Children with Dravet Syndrome / [...]

Jackson’s Song – Chicago, IL

Iron Horse Ale House 6158 N. Northwest Hwy, Chicago

This past Spring the Aaron Family met with Nashville Singer/Songwriter Sami Lin and asked if she would be willing to write a song about, and for, their son Jackson. That song is “Jackson’s Song” and has been recorded and produced and is now available on ITunes, Spotify, and Pandora. We will be holding a fundraiser on [...]

5K for Dravet – Littleton, CO

Robert F. Clement Park 7306 W Bowles Ave, Littleton

This timed 5K and a 1 mile family-fun walk will be held at the Robert F. Clement Park, Littleton, CO. The event includes family-friendly activities and refreshments. Registration begins at 7:30 AM with the 5K beginning at 8:30 AM and the walk beginning at 8:45 AM. Proceeds benefit the Dravet Syndrome Foundation whose mission is to raise money [...]

Steps Toward A Cure: Schaumburg, IL

Busse Woods Elk Grove Village

Join us September 7th for Steps Toward A Cure ~ Schaumburg, IL This fun, family-friendly event includes a 1-mile walk, refreshments, kids' activities and a raffle. Busse Woods, Grove 4, Near Hwy 53 and Higgins, across from Woodfield Mall. Onsite Registration: 9:00 AM Walk: 10:00 AM Fun activities from 10:30 AM - Noon Strollers welcomed and [...]

5k for Dravet ~ San Francisco

Golden Gate Park, 14th Avenue Picnic Area 425 John F. Kennedy Drive, San Francisco

Please join us for 5K for Dravet: San Francisco! Location: Golden Gate Park (just west of the rose garden) in San Francisco, CA The event will include light breakfast snacks and face painting for the family! Registration begins at 8:30 AM with the 5K - fun run beginning at 9:00 AM.

Double Down for Dravet – Frisco, TX

Toyota Stadium (West Side) 9200 World Cup Way, Frisco

Join us for an evening of fun & fundraising! 7th Annual Double Down for Dravet Saturday, September 28th 6:30pm-11:00pm $75 per person - advanced ticket purchase required ​ The evening includes appetizers, dinner, drinks, 3 hours of casino games by Aces Wild, and silent and live auctions. ​ EVENT PLANNING COMMITTEE: Bert & Leslie Bubela, Jeff [...]

$75

Steps Toward A Cure: Toledo

Swan Creek Metropark, Mary Jane Gill Shelter 4659 Airport Highway, Toledo

Join us on October 5th at the Swan Creek Metropark: Mary Jane Gill Shelter in Toledo, Ohio for this family-friendly event! Walk, run, jog or skip, let's come together to support the Dravet Syndrome Foundation. This event will include a 5K fun run or a family walk, kids activities, refreshments, a silent auction as well as [...]

Chicago Marathon

Grant Park Chicago

Chicago Marathon October 13th, 2019 Register for the race and then register to run for our kids! Team members agree to raise a minimum of $300 for DSF and we will mail you your race shirt.  You train for the race and raise money for the Dravet Syndrome Foundation.  We provide the resources you need to [...]

Steps Toward A Cure: Atlanta

Blackburn Park 3493 Ashford Dunwoody Road, Brookhaven

Join us on October 26th at Blackburn Park in Brookhaven, GA for this family-friendly event! Let’s come together to support the Dravet Syndrome Foundation, raise awareness and increase funds for research. This event will include a family walk, kids activities & refreshments. Adults: $25 Children:$15 Registration starts at 9:00 AM with the walk  beginning at 10:00 [...]

Double Down for Dravet: Philadelphia

Mitten Hall at Temple University 1913 N Broad Street, Philadelphia

Join us for a night of fun & fundraising at Double Down for Dravet: Philadelphia Taking place at Mitten Hall at Temple University, the evening includes appetizers, dinner, drinks, 3 hours of casino games, silent and live auctions. Tickets are now on sale for $100 per person. Limited table sponsorships are available that offer reserved seating. [...]

$100

UNC REX Healthcare Half Marathon

Raleigh, NC 2100 Hillsborough St, Raleigh

UNC REX Half Marathon November 3, 2019 Raleigh, NC Register for the race and then register to run for our kids! Team members agree to raise a minimum of $300 for DSF and we will mail you your race shirt.  You train for the race and raise money for the Dravet Syndrome Foundation.  We provide the [...]

Dash For Dravet On Turkey Day – Virtual Event

Virtual Event

Before the feast, get your family and friends together for our ~4th annual~ Dash for Dravet on Turkey Day! This is a virtual 5K so it can be accomplished anywhere in the United States Run, walk, jog, roll or treadmill at your pace/ Burn off calories before or after the big meal! Please go to www.dashfordravet.org [...]

$30

BMW Dallas Half Marathon

Dallas, Texas

BMW Dallas Half Marathon December 15, 2019 Dallas, Texas Register for the race and then register to run for our kids! Team members agree to raise a minimum of $300 for DSF and we will mail you your race shirt.  You train for the race and raise money for the Dravet Syndrome Foundation.  We provide the [...]

Double Down for Dravet: H-Town

Armadillo Palace 5015 Kirby Drive, Houston

Join us for a night of fun & fundraising at the Double Down for Dravet in Houston, Texas. Taking place at the Armadillo Palace , the evening includes appetizers, dinner, drinks, 3 hours of casino games by iHostPoker, silent and live auctions. Tickets are now on sale for $100 per person and advanced ticket purchase is [...]

$100

Chipotle Fundraiser – Maumee, OH

Chipotle - Maumee, OH 1385 Conant Street, Suite A, Maumee

Make dinner a selfless act by joining us for a fundraiser to support Dravet Syndrome Foundation. Come in to the Chipotle in Maumee, OH on Saturday, April 11th between 4:00pm and 8:00pm. Bring in this flyer, show it on your smartphone or tell the cashier you’re supporting the cause to make sure that 33% of the [...]

Steps Toward a Cure: Buffalo Grove, IL (POSTPONED)

Willow Stream Park 651 Old Checker Road, Buffalo Grove

Join us Sunday, May 17th for Steps Toward A Cure ~ Buffalo Grove, IL This fun, family-friendly event includes a 1 mile walk to raise awareness for the Dravet Syndrome Foundation. Willow Stream Park 651 Old Checker Road Buffalo Grove, IL 60089 Onsite Registration: 9:30 AM Walk: 10:00 AM Strollers welcomed and dogs on leashes are [...]