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July 2019
This past Spring the Aaron Family met with Nashville Singer/Songwriter Sami Lin and asked if she would be willing to write a song about, and for, their son Jackson. That song is “Jackson’s Song” and has been recorded and produced and is now available on ITunes, Spotify, and Pandora. We will be holding a fundraiser on [...]
Find out moreAugust 2019
This timed 5K and a 1 mile family-fun walk will be held at the Robert F. Clement Park, Littleton, CO. The event includes family-friendly activities and refreshments. Registration begins at 7:30 AM with the 5K beginning at 8:30 AM and the walk beginning at 8:45 AM. Proceeds benefit the Dravet Syndrome Foundation whose mission is to raise money [...]
Find out moreSeptember 2019
Join us September 7th for Steps Toward A Cure ~ Schaumburg, IL This fun, family-friendly event includes a 1-mile walk, refreshments, kids' activities and a raffle. Busse Woods, Grove 4, Near Hwy 53 and Higgins, across from Woodfield Mall. Onsite Registration: 9:00 AM Walk: 10:00 AM Fun activities from 10:30 AM - Noon Strollers welcomed and [...]
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Please join us for 5K for Dravet: San Francisco! Location: Golden Gate Park (just west of the rose garden) in San Francisco, CA The event will include light breakfast snacks and face painting for the family! Registration begins at 8:30 AM with the 5K - fun run beginning at 9:00 AM.
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Join us for an evening of fun & fundraising! 7th Annual Double Down for Dravet Saturday, September 22nd 6:30pm-11:00pm $75 per person - advanced ticket purchase required The evening includes appetizers, dinner, drinks, 3 hours of casino games by Aces Wild, and silent and live auctions. EVENT PLANNING COMMITTEE: Bert & Leslie Bubela, Jeff [...]
Find out moreOctober 2019
Join us on October 5th at the Swan Creek Metropark: Mary Jane Gill Shelter in Toledo, Ohio for this family-friendly event! Walk, run, jog or skip, let's come together to support the Dravet Syndrome Foundation. This event will include a 5K fun run or a family walk, kids activities, refreshments, a silent auction as well as [...]
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Chicago Marathon October 13th, 2019 Register for the race and then register to run for our kids! Team members agree to raise a minimum of $300 for DSF and we will mail you your race shirt. You train for the race and raise money for the Dravet Syndrome Foundation. We provide the resources you need to [...]
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