2020 DSF Educational Webinar Series

The 2020 DSF Educational Webinar Series featured some of the sessions from our postponed 2020 conference agenda presented by clinicians and researchers on topics important to the Dravet syndrome community. It also included Understand & Ask sessions where industry partners shared new developments on their products, upcoming clinical trials, or details on their patient assistance programs. Our 2020 educational webinar series is archived below.

Coping w/COVID-19
Jennifer Tischer
DSF Board Member

Status Epilepticus
Elaine C. Wirrell, MD, Director of Pediatric Epilepsy at Mayo Clinic

Telemedicine in Dravet Syndrome:  Connecting with Your Specialist Across the Distance
Katherine Helbig, MS, CGS
Mark Fitzgerald, MD, PhD
Children’s Hospital of Philadelphia

Natural History Study Results and Gait Study Plans
Anne Berg, PhD
Lurie Children’s Hospital of Chicago

Discovery and development of new therapies using zebrafish
Scott Baraban, PhD 
University of California San Francisco

VIP Sibling Kits and Parent Resources
Laurie Bailey
Carla Schad, MD

The Science of Cannabis and Dravet Syndrome
Julie Milder, PhD
Greenwich Biosciences

Stiripentol: Patient Access and Reimbursement
Jennifer Le

The REAL Ketogenic Diet: Tales from 5478 Keto meals
Sarah Mullins, MD

FINTEPLA overview and Zogenix Central Patient Services Program
David Schaaf, VP, Sr. Medical Officer

One-time Gene Therapy for Dravet Syndrome: Technology Presentation and Update on Clinical Plans
Encoded Therapeutics

The most recent updates for EPX-100 Phase 1 & 2 studies
Epygenix Therapeutics, Inc.

An Update on Clinical Progress With STK-001 for Dravet Syndrome
Stoke Therapeutics

Designing Better Clinical Trials – Measuring More Than Seizures
Linda Laux, MD
Lurie Children’s Hospital 

Back to School Anxiety in the Dravet Community
Patricia Dean, ARNP, CNR, RN
Nicklaus Children’s Hospital

An Introduction to Valtoco Diazepam Nasal Spray
Nancy Santilli, NP, MSN, FAAN15