DSF Family Network & Facebook Support Groups 2017-04-04T01:53:28+00:00

DSF Family Network & Facebook Support Groups

Welcome to our support community! DSF hosts a private support group for parents around the world. If you would like to connect with other families, this is a great place to ask questions about living with Dravet syndrome. DSF also recently started a DSF Family Network that includes Regional Support Groups and Ambassadors. (US only)

To join, please fill out the form below with your child’s information. Once you complete the form, please send one of our Admin’s a friend request so we can add you to the group.

Click here to send us a Friend Request

Are you a friend or family member that would like to keep to date on Dravet news and events in your area? You can sign up below for our DSF newsletters. Please contact us with any questions: nichelle@dravetfoundation.org / jenny@dravetfoundation.org

DSF Social Media Policy

Which best defines your role*:

First Name*

Last Name*



Zip/Postal Code


Your Email*

Would you like to receive our newsletters?

Child's First Name

Year of Birth


Age at Diagnosis


Other Diagnosis:

Is your child over age 3 and diagnosed within the past 12 months? YesNo

The following questions will assist us in determining how we can improve early diagnosis for Dravet syndrome

Age of Genetic Diagnosis

Age of Clinical Diagnosis

Did you have to travel or switch neurologists to obtain your diagnosis? YesNo

If so, where was diagnosis missed? (city/state)

Where was the diagnosis obtained? (city/state)

Would you like to be added to a regional Dravet Facebook group in your area? (U.S. only)

Please review the DSF Social Media Guidelines and check that you accept (button above). If you register for the Regional Family Nework, an ambassador from your region will reach out to you by email. Yes, I have read and agree


**Once you complete the form, if you are a parent or caregiver please click here to send one of our group admins a friend request on Facebook so we can add you to the groups. Thanks!