DSF moderates private support groups for parents and caregivers of loved ones with Dravet syndrome. These are a great resource for families to ask questions and find support.

To join, please follow these steps:

  • Fill out the form below to join the DSF Family Network and agree to the Terms of Use.

  • Request to join our Support Group on Facebook (you must have a Facebook account to proceed).

  • If you do not receive an approval notice on Facebook within 5 business days please send us a message.
    We may require additional information to process your request.

The information collected by Dravet Syndrome Foundation will not be sold or distributed outside of DSF and is used solely to verify the identity of and communicate with Family Network members as needed. The DSF Family Network is open to any parent, caregiver, sibling or extended family member who is interested in learning more about Dravet syndrome and supporting our community of families. Membership in the DSF moderated Parent and Caregiver Facebook support group is limited to parents and primary caregivers who are making medical decisions for their loved one with Dravet syndrome and are enrolled in the Family Network. Membership is contingent upon following the Group Rules as explained on the group’s page and agreement to our Social Media Terms of Use. Questions or concerns can be directed to our team

International Support Groups

Main Support Group
Caregivers of Adults

US Support Groups

Northeast Support Group
Southeast Support Group
Midwest Support Group
Mountain Support Group
West Coast Support Group