Erin Reoyo – Seattle, Washington
Erin lives in Kenmore, Washington (just north of Seattle), with her husband, son, and daughter. Her 3 year old son was diagnosed with an SCN1A-gene mutation/Dravet Syndrome in April 2016, shortly after his second birthday. She quickly got connected with and received online support from other DS families across the country. That summer, she attended the DSF Biennial Family and Professional Conference in Miami, Florida, as well as hosted a local “Superheroes for a Super Kid” fundraiser (and has hopes to make this an annual event). Now, she hopes to be a source of support for other new families as she and her own family continue to educate themselves and navigate all that is associated with Dravet Syndrome.
Erin received her B.S. in Education from New Mexico State University and her M.A. in Communication Sciences and Disorders from Western Washington University. She is Speech-Language Pathologist who works very (very!) part time at a local children’s therapy clinic after having spent nearly 12 years working as an SLP in a local school district. Now, she is turning her attention on how to best advocate for her son and his many Dravet brothers and sisters across the country. When not wearing purple and spreading awareness for Dravet Syndrome and Epilepsy (let’s be honest, she is nearly always wearing purple), she is a baby(toddler)wearer, likes to (try to) read, and is trying her hand at maintaining a Bullet Journal. She and her family cheer for the Seattle Sounders and enjoy adventures around the Pacific Northwest.