2018 Conference Presentations2018-08-16T17:59:22+00:00

2018 DSF Conference & Presentations

Dravet Syndrome Foundation presented its 3rd Biennial Family and Professional Conference in collaboration with Children’s Hospital Colorado in July of 2018 in Aurora, Colorado.

The following Conference Speakers have given us permission to share their presentations from our 2018 event.

Conference Day Presenter Topic Video Powerpoint
Thursday 7/19/18 Miller, Ian MD Dravet Syndrome 101 video-icon pdf-icon
Thursday 7/19/18 Andrade, Danielle MD MSC FRCPC Dravet Syndrome in Adults video-icon n/a
Friday 7/20/18 Perry, M Scott MD Introduction to Dravet Syndrome video-icon pdf-icon
Friday 7/20/18 Segal, Eric MD Second-Line Treatments in DS video-icon pdf-icon
Friday 7/20/18 Knupp, Kelly MD MSCS FAES Co-Morbidities in DS video-icon pdf-icon
Friday 7/20/18 Morrow, Brian Esq Legal Ambiguity of Artisanal MMJ Use video-icon pdf-icon
Friday 7/20/18 Joshi, Charuta MD MBBS MMJ in the Treatment of DS video-icon n/a
Friday 7/20/18 Donner, Elizabeth MD SUDEP in DS video-icon pdf-icon
Friday 7/20/18 Clinical Management Panel Q&A (morning) video-icon n/a
Friday 7/20/18 Santucci, Kourtney MD Partnering with your Pediatrician video-icon pdf-icon
Friday 7/20/18 Demarest, Scott MD Epilepsy Disorders video-icon pdf-icon
Friday 7/20/18 Lal, Dennis PHD SCN1A Data Science video-icon n/a
Friday 7/20/18 Stratton, Anne MD Gait Abnormality in DS video-icon pdf-icon
Friday 7/20/18 Saneto, Russell DO PHD Keto Diet in DS video-icon n/a
Friday 7/20/18 Sullivan, Ginenne BSN RN CPN Pediatric Transition to Adult Care video-icon n/a
Friday 7/20/18 Press, Craig MD PHD Non-Convulsive Status Epilepticus video-icon n/a
Friday 7/20/18 Clinical Management Panel Q&A (afternoon) video-icon n/a
Friday 7/20/18 Knupp, Kelly MD
Bailey, Laurie
Sibling Survey Study Update & Sib Panel video-icon pdf-icon
Friday 7/20/18 Hagy-Hancock, Julie MS Developing your Child’s IEP video-icon n/a
Friday 7/20/18 Villas, Nicole DSF Research Summary and Q&A video-icon pdf-icon
Friday 7/20/18 Wood, Ashley LCSW CEAP Daily Tips & Tools for Families n/a pdf-icon
Friday 7/20/18 Tischer, Jennifer Parents Supporting Parents video-icon n/a
Friday 7/20/18 O’Driscoll, Lori Hope in DS video-icon n/a
Friday 7/20/18 Wilkening, Greta PHD PSYD The Role of Neuropsychological Assessment in Caring for a Child with DS video-icon n/a
Saturday 7/21/18 Thompson, Brad & Karen Marriage & Relationships with a Special Needs Child video-icon pdf-icon
Saturday 7/21/18 Angione, Katie MS CGC Genetics 101:  SCN1A video-icon pdf-icon
Saturday 7/21/18 Benke, Tim MD PHD Where’s my Gene Therapy? video-icon pdf-icon
Saturday 7/21/18 Genetics & Basic Science Panel Q&A video-icon n/a
Saturday 7/21/18 Welborn, Michelle PharmD Pharmacology 101 video-icon pdf-icon
Saturday 7/21/18 Koh, Sookyong MD PHD Role of Neuroinflammation in DS video-icon n/a
Saturday 7/21/18 Dlugos, Dennis MD Clinical Trials Overview video-icon pdf-icon
Saturday 7/21/18 Berg, Anne PHD Natural History of DS video-icon n/a
Saturday 7/21/18 Laux, Linda MD Dravet Delphi Project video-icon n/a
Saturday 7/21/18 Trials Panel Q&A video-icon n/a
Saturday 7/21/18 Knupp, Kelly MD
Villas, Nicole
Patient Centered Outcomes Research video-icon pdf-icon