2018 DSF Conference & Presentations
Dravet Syndrome Foundation presented its 3rd Biennial Family and Professional Conference in collaboration with Children’s Hospital Colorado in July of 2018 in Aurora, Colorado.
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Dravet 101
Non Convulsive Status Epilepticus in Dravet Syndrome
Pediatric Transition to Adult Care in Dravet Syndrome
Ketogenic Diet and Dravet Syndrome
Clinical Management Panel Q&A
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7
The following Conference Speakers have given us permission to share their presentations from our 2018 event.
| Conference Day | Presenter | Topic | Video | Powerpoint |
|---|---|---|---|---|
| Thursday 7/19/18 | Miller, Ian MD | Dravet Syndrome 101 |  |
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| Thursday 7/19/18 | Andrade, Danielle MD MSC FRCPC | Dravet Syndrome in Adults | |
n/a |
| Friday 7/20/18 | Perry, M Scott MD | Introduction to Dravet Syndrome | |
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| Friday 7/20/18 | Segal, Eric MD | Second-Line Treatments in DS | |
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| Friday 7/20/18 | Knupp, Kelly MD MSCS FAES | Co-Morbidities in DS | |
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| Friday 7/20/18 | Morrow, Brian Esq | Legal Ambiguity of Artisanal MMJ Use | |
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| Friday 7/20/18 | Joshi, Charuta MD MBBS | MMJ in the Treatment of DS | |
n/a |
| Friday 7/20/18 | Donner, Elizabeth MD | SUDEP in DS | |
|
| Friday 7/20/18 | Clinical Management Panel Q&A (morning) | |
n/a | |
| Friday 7/20/18 | Santucci, Kourtney MD | Partnering with your Pediatrician | |
|
| Friday 7/20/18 | Demarest, Scott MD | Epilepsy Disorders | |
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| Friday 7/20/18 | Lal, Dennis PHD | SCN1A Data Science | |
n/a |
| Friday 7/20/18 | Stratton, Anne MD | Gait Abnormality in DS | |
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| Friday 7/20/18 | Saneto, Russell DO PHD | Keto Diet in DS | |
n/a |
| Friday 7/20/18 | Sullivan, Ginenne BSN RN CPN | Pediatric Transition to Adult Care | |
n/a |
| Friday 7/20/18 | Press, Craig MD PHD | Non-Convulsive Status Epilepticus | |
n/a |
| Friday 7/20/18 | Clinical Management Panel Q&A (afternoon) | |
n/a | |
| Friday 7/20/18 | Knupp, Kelly MD Bailey, Laurie |
Sibling Survey Study Update & Sib Panel | |
|
| Friday 7/20/18 | Hagy-Hancock, Julie MS | Developing your Child’s IEP | |
n/a |
| Friday 7/20/18 | Villas, Nicole | DSF Research Summary and Q&A | |
|
| Friday 7/20/18 | Wood, Ashley LCSW CEAP | Daily Tips & Tools for Families | n/a | |
| Friday 7/20/18 | Tischer, Jennifer | Parents Supporting Parents | |
n/a |
| Friday 7/20/18 | O’Driscoll, Lori | Hope in DS | |
n/a |
| Friday 7/20/18 | Wilkening, Greta PHD PSYD | The Role of Neuropsychological Assessment in Caring for a Child with DS | |
n/a |
| Saturday 7/21/18 | Thompson, Brad & Karen | Marriage & Relationships with a Special Needs Child | |
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| Saturday 7/21/18 | Angione, Katie MS CGC | Genetics 101: SCN1A | |
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| Saturday 7/21/18 | Benke, Tim MD PHD | Where’s my Gene Therapy? | |
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| Saturday 7/21/18 | Genetics & Basic Science Panel Q&A | |
n/a | |
| Saturday 7/21/18 | Welborn, Michelle PharmD | Pharmacology 101 | |
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| Saturday 7/21/18 | Koh, Sookyong MD PHD | Role of Neuroinflammation in DS | |
n/a |
| Saturday 7/21/18 | Dlugos, Dennis MD | Clinical Trials Overview | |
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| Saturday 7/21/18 | Berg, Anne PHD | Natural History of DS | |
n/a |
| Saturday 7/21/18 | Laux, Linda MD | Dravet Delphi Project | |
n/a |
| Saturday 7/21/18 | Trials Panel Q&A | |
n/a | |
| Saturday 7/21/18 | Knupp, Kelly MD Villas, Nicole |
Patient Centered Outcomes Research | |
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