2018 DSF Conference & Presentations
Dravet Syndrome Foundation presented its 3rd Biennial Family and Professional Conference in collaboration with Children’s Hospital Colorado in July of 2018 in Aurora, Colorado. Videos and presentation slides are available below.
If you are interested in videos from our 2016 Conference at Nicklaus Children’s Hospital, they can be found here.
Subscribe to DSF YouTube Channel1
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Dravet 101
Non Convulsive Status Epilepticus in Dravet Syndrome
Pediatric Transition to Adult Care in Dravet Syndrome
Ketogenic Diet and Dravet Syndrome
Clinical Management Panel Q&A - Part 1
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The following Conference Speakers have given us permission to share their presentations from our 2018 event.
| Conference Day | Presenter | Topic | Video | Powerpoint |
|---|---|---|---|---|
| Thursday 7/19/18 | Miller, Ian MD | Dravet Syndrome 101 |  |
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| Thursday 7/19/18 | Andrade, Danielle MD MSC FRCPC | Dravet Syndrome in Adults | |
n/a |
| Friday 7/20/18 | Perry, M Scott MD | Introduction to Dravet Syndrome | |
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| Friday 7/20/18 | Segal, Eric MD | Second-Line Treatments in DS | |
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| Friday 7/20/18 | Knupp, Kelly MD MSCS FAES | Co-Morbidities in DS | |
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| Friday 7/20/18 | Morrow, Brian Esq | Legal Ambiguity of Artisanal MMJ Use | |
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| Friday 7/20/18 | Joshi, Charuta MD MBBS | MMJ in the Treatment of DS | |
n/a |
| Friday 7/20/18 | Donner, Elizabeth MD | SUDEP in DS | |
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| Friday 7/20/18 | Clinical Management Panel Q&A (morning) | |
n/a | |
| Friday 7/20/18 | Santucci, Kourtney MD | Partnering with your Pediatrician | |
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| Friday 7/20/18 | Demarest, Scott MD | Epilepsy Disorders | |
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| Friday 7/20/18 | Lal, Dennis PHD | SCN1A Data Science | |
n/a |
| Friday 7/20/18 | Stratton, Anne MD | Gait Abnormality in DS | |
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| Friday 7/20/18 | Saneto, Russell DO PHD | Keto Diet in DS | |
n/a |
| Friday 7/20/18 | Sullivan, Ginenne BSN RN CPN | Pediatric Transition to Adult Care | |
n/a |
| Friday 7/20/18 | Press, Craig MD PHD | Non-Convulsive Status Epilepticus | |
n/a |
| Friday 7/20/18 | Clinical Management Panel Q&A (afternoon) | |
n/a | |
| Friday 7/20/18 | Knupp, Kelly MD Bailey, Laurie |
Sibling Survey Study Update & Sib Panel | |
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| Friday 7/20/18 | Hagy-Hancock, Julie MS | Developing your Child’s IEP | |
n/a |
| Friday 7/20/18 | Villas, Nicole | DSF Research Summary and Q&A | |
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| Friday 7/20/18 | Wood, Ashley LCSW CEAP | Daily Tips & Tools for Families | n/a | |
| Friday 7/20/18 | Tischer, Jennifer | Parents Supporting Parents | |
n/a |
| Friday 7/20/18 | O’Driscoll, Lori | Hope in DS | |
n/a |
| Friday 7/20/18 | Wilkening, Greta PHD PSYD | The Role of Neuropsychological Assessment in Caring for a Child with DS | |
n/a |
| Saturday 7/21/18 | Thompson, Brad & Karen | Marriage & Relationships with a Special Needs Child | |
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| Saturday 7/21/18 | Angione, Katie MS CGC | Genetics 101: SCN1A | |
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| Saturday 7/21/18 | Benke, Tim MD PHD | Where’s my Gene Therapy? | |
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| Saturday 7/21/18 | Genetics & Basic Science Panel Q&A | |
n/a | |
| Saturday 7/21/18 | Welborn, Michelle PharmD | Pharmacology 101 | |
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| Saturday 7/21/18 | Koh, Sookyong MD PHD | Role of Neuroinflammation in DS | |
n/a |
| Saturday 7/21/18 | Dlugos, Dennis MD | Clinical Trials Overview | |
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| Saturday 7/21/18 | Berg, Anne PHD | Natural History of DS | |
n/a |
| Saturday 7/21/18 | Laux, Linda MD | Dravet Delphi Project | |
n/a |
| Saturday 7/21/18 | Trials Panel Q&A | |
n/a | |
| Saturday 7/21/18 | Knupp, Kelly MD Villas, Nicole |
Patient Centered Outcomes Research | |
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