New Initiative: Dravet Dialogues

DSF is excited to launch Dravet Dialogues, a live, interactive, virtual series of support group meetings taking place March-May 2019. These sessions give parents a chance to connect with community experts on a variety of topics while interacting in real-time with fellow parents and caregivers. We hope that through these sessions our community will feel empowered, educated, and prepared to tackle their journey with Dravet each day. All sessions are saved in our private Facebook support group along with corresponding resources and materials. To participate you must be a member of our private parent support group. Information for how to join can be found at www.dravetsupportgroup.org

Upcoming Sessions

  • Wednesday, April 24, 9:30PM ET – Adults and Dravet Syndrome with Kathy & Bob Dodd, DSF Parent Ambassadors
  • Tuesday, May 7, 8:30PM ET – Dravet Dads with Stephen Carlin, DSF Parent Ambassador
  • Wednesday, May 15, 9:00PM ET – Dietary Therapies with Sarah Mullins, MD

Recent Archived Sessions

  • DSF Programs and Resources
  • Gene Therapy with Nicole Villas, DSF Board President & Scientific Director
  • Behavior Management with Sarah Mullins, MD

Have a suggestion for a topic you’d like to discuss or questions about this program? Email wendy@dravetfoundation.org. Hope to “see” you there!