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Do Not Sell My Personal Informationadmin2019-03-29T08:07:15-05:00

This page was last changed on 05/15/2019, last checked on 05/15/2019 and applies to citizens and legal permanent residents of the United States.

1. Introduction

Our website, https://www.dravetfoundation.org (hereinafter: "the website") uses cookies and other related technologies (for convenience all technologies are referred to as "cookies"). Cookies are also placed by third parties we have engaged. In the document below we inform you about the use of cookies on our website.

2. Selling data to third parties

We do not sell data to third parties

3. What are cookies?

A cookie is a small simple file that is sent along with pages of this website and stored by your browser on the hard drive of your computer or another device. The information stored therein may be returned to our servers or to the servers of the relevant third parties during a subsequent visit.

4. What are scripts?

A script is a piece of program code that is used to make our website function properly and interactively. This code is executed on our server or on your device.

5. What is a web beacon?

A web beacon (or a pixel tag) is a small, invisible piece of text or image on a website that is used to monitor traffic on a website. In order to do this, various data about you is stored using web beacons.

6. Cookies

6.1 Technical or functional cookies

Some cookies ensure that certain parts of the website work properly and that your user preferences remain known. By placing functional cookies, we make it easier for you to visit our website. This way, you do not need to repeatedly enter the same information when visiting our website and, for example, the items remain in your shopping cart until you have paid. We may place these cookies without your consent.

6.2 Statistics cookies

We use statistics cookies to optimize the website experience for our users. With these statistics cookies we get insights in the usage of our website.

6.3 Advertising cookies

On this website we use advertising cookies, enabling us to gain insights into the campaign results. This happens based on a profile we create based on your behavior on https://www.dravetfoundation.org. With these cookies you, as website visitor, are linked to a unique ID but these cookies will not profile your behavior and interests to serve personalized ads.

You can object to the tracking by these cookies by clicking the "Manage Consent" button.

6.4 Marketing/Tracking cookies

Marketing/Tracking cookies are cookies or any other form of local storage, used to create user profiles to display advertising or to track the user on this website or across several websites for similar marketing purposes.

6.5 Social media buttons

On our website we have included buttons for Facebook, Twitter, LinkedIn and Instagram to promote webpages (e.g. “like”, “pin”) or share (e.g. “tweet”) on social networks like Facebook, Twitter, LinkedIn and Instagram. These buttons work using pieces of code coming from Facebook, Twitter, LinkedIn and Instagram themselves. This code places cookies. These social media buttons also can store and process certain information, so a personalized advertisement can be shown to you.

Please read the privacy statement of these social networks (which can change regularly) to read what they do with your (personal) data which they process using these cookies. The data that is retrieved is anonymized as much as possible. Facebook, Twitter, LinkedIn and Instagram are located in the United States.

7. Placed cookies

Stripe

Functional

Usage

We use Stripe for payment processing.

Sharing data

For more information, please read the Stripe Privacy Statement.

Functional

Name
__stripe_mid
Retention
1 year
Function
Provide fraud prevention
Name
__stripe_sid
Retention
30 minutes
Function
Provide fraud prevention

Google Analytics

Statistics (anonymous), Statistics, Purpose pending investigation

Usage

We use Google Analytics for website statistics.

Sharing data

For more information, please read the Google Analytics Privacy Statement.

Statistics (anonymous)

Name
_ga
Retention
2 years
Function
Name
_gid
Retention
1 day
Function
Count and track pageviews
Name
_gat
Retention
1 minute
Function
Filter requests from bots

Statistics

Name
lsid
Retention
2 years
Function
Name
_gat_gtag_UA_*
Retention
1 minute
Function
Store a unique user ID
Name
_dc_gtm_UA-*
Retention
1 minute
Function
Store number of service requests

Purpose pending investigation

Name
_ga_*
Retention
2 years
Function

WooCommerce

Functional

Usage

We use WooCommerce for webshop management.

Sharing data

This data is not shared with third parties.

Functional

Name
wc_cart_hash_*
Retention
session
Function
Store items in shopping cart
Name
woocommerce_items_in_cart
Retention
session
Function
Store items in shopping cart
Name
woocommerce_cart_hash
Retention
1 day
Function
Store items in shopping cart
Name
wp_woocommerce_session_*
Retention
session
Function
Store performed actions on the website
Name
wc_fragments_*
Retention
persistent
Function
Name
wc_cart_created
Retention
session
Function
Store performed actions on the website

Wordfence

Functional, Purpose pending investigation

Usage

We use Wordfence for website security.

Sharing data

For more information, please read the Wordfence Privacy Statement.

Functional

Name
wfvt_*
Retention
30 minutes
Function
Provide fraud prevention

Purpose pending investigation

Name
wf-scan-issue-expanded-*
Retention
Function

JetPack

Statistics, Purpose pending investigation, Functional

Usage

We use JetPack for advertising.

Sharing data

For more information, please read the JetPack Privacy Statement.

Statistics

Name
tk_tc
Retention
session
Function
Store the user's usage history
Name
tk_*r
Retention
1 year
Function
Store referrer ID's
Name
tk_*r
Retention
1 year
Function
Store referrer ID's
Name
tk_qs
Retention
30 minutes
Function

Purpose pending investigation

Name
tk_r3d
Retention
Function

Functional

Name
jetpackState
Retention
session
Function
Provide functions across pages

Twitter

Marketing/Tracking, Functional

Usage

We use Twitter for display of recent social posts and/or social share buttons.

Sharing data

For more information, please read the Twitter Privacy Statement.

Marketing/Tracking

Name
metrics_token
Retention
persistent
Function
Store if the user has seen embedded content

Functional

Name
local_storage_support_test
Retention
persistent
Function
Provide load balancing functionality

LinkedIn

Marketing/Tracking, Functional, Purpose pending investigation

Usage

We use LinkedIn for display of recent social posts and/or social share buttons.

Sharing data

For more information, please read the LinkedIn Privacy Statement.

Marketing/Tracking

Name
X-LI-IDC
Retention
session
Function
Provide functions across pages
Name
bcookie
Retention
2 years
Function
Store browser details
Name
li-oatml
Retention
1 month
Function
Provide ad delivery or retargeting
Name
li_sugr
Retention
3 months
Function
Store browser details
Name
UserMatchHistory
Retention
30 days
Function
Provide ad delivery or retargeting
Name
lidc
Retention
1 day
Function
Store performed actions on the website
Name
bscookie
Retention
2 years
Function
Store performed actions on the website

Functional

Name
BizographicsOptOut
Retention
10 years
Function
Store privacy preferences

Purpose pending investigation

Name
linkedin_oauth_*
Retention
session
Function

Facebook

Marketing/Tracking, Functional, Purpose pending investigation

Usage

We use Facebook for display of recent social posts and/or social share buttons.

Sharing data

For more information, please read the Facebook Privacy Statement.

Marketing/Tracking

Name
_fbp
Retention
3 months
Function
Store and track visits across websites
Name
_fbc
Retention
2 years
Function
Store last visit
Name
fbm*
Retention
1 year
Function
Store account details
Name
fbm*
Retention
1 year
Function
Store account details
Name
xs
Retention
3 months
Function
Store a unique session ID
Name
fr
Retention
3 months
Function
Provide ad delivery or retargeting
Name
act
Retention
90 days
Function
Store logged in users
Name
datr
Retention
2 years
Function
Provide fraud prevention
Name
c_user
Retention
30 days
Function
Store a unique user ID
Name
sb
Retention
2 years
Function
Store browser details
Name
*_fbm_
Retention
1 year
Function
Store account details

Functional

Name
wd
Retention
1 week
Function
Read screen resolution
Name
csm
Retention
90 days
Function
Provide fraud prevention
Name
presence
Retention
session
Function
Store and track if the browser tab is active

Purpose pending investigation

Name
actppresence
Retention
Function

Poptin

Purpose pending investigation

Usage

We use Poptin for popup creation.

Sharing data

For more information, please read the Poptin Privacy Statement.

Purpose pending investigation

Name
poptin_user_id
Retention
Function
Name
poptin_user_ip
Retention
Function
Name
poptin_user_country_code
Retention
Function
Name
poptin_d_a_x_v_*
Retention
Function
Name
poptin_d_r_v_*
Retention
Function
Name
poptin_session
Retention
Function
Name
poptin_old_user
Retention
Function
Name
poptin_referrer
Retention
Function
Name
poptin_origin_landing_page
Retention
Function
Name
poptin_every_visit_session
Retention
Function
Name
poptin_client_id
Retention
Function

Automattic

Statistics

Usage

We use Automattic for website development.

Sharing data

For more information, please read the Automattic Privacy Statement.

Statistics

Name
tk_ai
Retention
session
Function
Store a unique user ID

Complianz

Functional

Usage

We use Complianz for cookie consent management.

Sharing data

For more information, please read the Complianz Privacy Statement.

Functional

Name
cmplz_choice
Retention
365 days
Function
Store if a message has been dismissed
Name
cmplz_id
Retention
365 days
Function
Store anonymized statistics
Name
cmplz_user_data
Retention
365 days
Function
Determine which cookie banner to show
Name
complianz_policy_id
Retention
365 days
Function
Store accepted cookie policy ID
Name
complianz_consent_status
Retention
365 days
Function
Store cookie consent preferences
Name
cmplz_statistics-anonymous
Retention
365 days
Function
Store cookie consent preferences
Name
cmplz_statistics
Retention
365 days
Function
Store cookie consent preferences
Name
cmplz_policy_id
Retention
365 days
Function
Store accepted cookie policy ID
Name
cmplz_functional
Retention
365 days
Function
Store cookie consent preferences
Name
cmplz_preferences
Retention
365 days
Function
Store cookie consent preferences
Name
cmplz_marketing
Retention
365 days
Function
Store cookie consent preferences
Name
cmplz_consent_status
Retention
365 days
Function
Store cookie consent preferences

Google Analytics Dashboard for WP

Statistics (anonymous), Statistics

Usage

We use Google Analytics Dashboard for WP for website statistics.

Sharing data

This data is not shared with third parties.

Statistics (anonymous)

Name
gadwp_wg_default_swmetric
Retention
1 year
Function
Store and count pageviews
Name
gadwp_wg_default_metric
Retention
1 year
Function
Store and count pageviews
Name
gadwp_wg_default_dimension
Retention
1 year
Function
Store and count pageviews
Name
gadwp_ir_default_swmetric
Retention
1 year
Function
Store and count pageviews
Name
gadwp_ir_default_metric
Retention
1 year
Function
Store and count pageviews

Statistics

Name
gadwp_ir_default_dimension
Retention
1 year
Function
Store and count pageviews

WP Do Not Track

Functional

Usage

We use WP Do Not Track for cookie consent management.

Sharing data

This data is not shared with third parties.

Functional

Name
dont_track_me
Retention
1 year
Function
Store 'do not track' signals

WP Google Maps

Functional

Usage

We use WP Google Maps for maps display.

Sharing data

This data is not shared with third parties.

Functional

Name
wpgmza-api-consent-given
Retention
1 year
Function
Store cookie consent preferences

Instagram

Marketing/Tracking

Usage

We use Instagram for display of recent social posts and/or social share buttons.

Sharing data

For more information, please read the Instagram Privacy Statement.

Marketing/Tracking

Name
actppresence
Retention
1 year
Function
Store ad display frequency

Fusion Theme

Functional, Purpose pending investigation

Usage

We use Fusion Theme for website design.

Sharing data

This data is not shared with third parties.

Functional

Name
fusionredux_current_tab
Retention
1 week
Function

Purpose pending investigation

Name
fusion_metabox_tab_*
Retention
Function

Google Ads

Marketing/Tracking

Usage

We use Google Ads for advertising.

Sharing data

For more information, please read the Google Ads Privacy Statement.

Marketing/Tracking

Name
ads/ga-audiences
Retention
expires immediately
Function
Store information for remarketing purposes

Slider Revolution

Purpose pending investigation

Usage

We use Slider Revolution for website design.

Sharing data

This data is not shared with third parties.

Purpose pending investigation

Name
rs6_overview_pagination
Retention
Function

CloudFlare

Functional

Usage

We use CloudFlare for content distribution network (CDN) services.

Sharing data

For more information, please read the CloudFlare Privacy Statement.

Functional

Name
__cfduid
Retention
30 days
Function
Identify trusted web traffic
Name
cf_use_ob
Retention
Function
Name
cf_ob_info
Retention
Function

Google Adsense

Marketing/Tracking

Usage

We use Google Adsense for showing advertisements.

Sharing data

For more information, please read the Google Adsense Privacy Statement.

Marketing/Tracking

Name
_gcl_au
Retention
persistent
Function
Store and track conversions
Name
google_adsense_settings
Retention
persistent
Function
Provide ad delivery or retargeting

Miscellaneous

Purpose pending investigation

Usage

Sharing data

Sharing of data is pending investigation

Purpose pending investigation

Name
__ssid
Retention
Function
Name
poptin_new_user
Retention
Function
Name
give_source
Retention
Function
Name
give_medium
Retention
Function
Name
give_campaign
Retention
Function
Name
give_content
Retention
Function
Name
state
Retention
Function
Name
doublethedonation
Retention
Function
Name
fusionCopyType
Retention
Function
Name
fusionCopyContent
Retention
Function
Name
gf_display_empty_fields
Retention
Function
Name
wp-postpass_*
Retention
Function
Name
poptin_c_new_visitor
Retention
Function
Name
poptin_c_visitor
Retention
Function
Name
__stripe-js-v3-features__
Retention
Function

8. Consent

When you visit our website for the first time, we will show you a pop-up with an explanation about cookies. You do have the right to opt-out and to object against the further use of non-functional cookies.

8.1 Manage your consent settings

You have loaded the Cookie Policy without javascript support. On AMP, you can use the manage consent button on the bottom of the page.

You can also disable the use of cookies via your browser, but please note that our website may no longer work properly.

9. Your rights with respect to personal data

You have the following rights with respect to your personal data:

  • you may submit a request for access to the data we process about you;
  • you may object to the processing;
  • you may request an overview, in a commonly used format, of the data we process about you;
  • you may request correction or deletion of the data if it is incorrect or not or no longer relevant, or to ask to restrict the processing of the data.

To exercise these rights, please contact us. Please refer to the contact details at the bottom of this Cookie Policy. If you have a complaint about how we handle your data, we would like to hear from you.

10. Enabling/disabling and deleting cookies

You can use your internet browser to automatically or manually delete cookies. You can also specify that certain cookies may not be placed. Another option is to change the settings of your internet browser so that you receive a message each time a cookie is placed. For more information about these options, please refer to the instructions in the Help section of your browser.

11. Contact details

For questions and/or comments about our Cookie Policy and this statement, please contact us by using the following contact details:

Dravet Syndrome Foundation
PO BOX 3026
08034 Cherry Hill
United States
Website: https://www.dravetfoundation.org
Email: info@dravetfoundation.org
Phone number: 203-392-1950

This Cookie Policy was synchronized with cookiedatabase.org on 10/15/2021

Dravet Syndrome Foundation, Inc.
PO Box 3026
Cherry Hill, NJ 08034
P 203-392-1955

*Calls are processed through Google voice and then distributed to staff members, so it may take 24-48 hours for a response. For a quicker response, please email [email protected]

Mary Anne Meskis, Executive Director
[email protected]

General Inquiries
[email protected]

Please Note: DSF is unable to provide medical advice. Please direct any medical related questions to your physician.

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