DSF Disaster Relief Fund


DSF has long recognized the financial burden our families face and has offered our Patient Assistance Grant (PAG) program since we were first founded in 2009. In addition to this program, we have also established the DSF Disaster Relief and Recovery Fund for patients with Dravet syndrome that have been impacted by natural and other significant natural disaster events in the U.S., such as fires, tornadoes, hurricanes, or earthquakes. Flooding that results from a significant natural disaster event would also qualify.

This program is open to U.S. residents only, who are a member of the DSF Family Network. Applications must be submitted within 90 days of the occurrence of the natural disaster. A natural or significant disaster is defined as, “any event or force of nature that has catastrophic consequences, such as an avalanche, earthquake, forest fire, hurricane, tornado, tsunami, and volcanic eruption.”

Funds are not available at this time in response to the COVID-19 Pandemic. DSF understands most of our families will be going through significant hardships in the coming weeks and months due to the economic burden of COVID-19 including job losses, revenue losses, small business closure, childcare expenses, investment and savings losses, and medical expenses related to prevention and/or treatment. We will update the Relief Fund eligibility rules as the situation evolves, hoping to use the small amount of resources available to help those in our community most in need. We appreciate your patience and understanding as this disaster affects every member of our community in some significant way.

View the full program requirements and access the online application here.  If you are unsure if your application meets criteria or if you have any questions, please email Jamie.