Decoding Dravet – Helping you to learn about the past, present, and future of Dravet syndrome and the Dravet Syndrome Foundation.
My name is Mary Anne Meskis. I am the Executive Director of the Dravet Syndrome Foundation and I have an adult son with Dravet syndrome. My blog will keep you up to date on current research, treatment options, advocacy efforts, community activities, and other topics that are important to the Dravet syndrome community.
I have never been someone who makes New Year’s resolutions, but this year I have decided to break that tradition. As a start to this new decade, my resolution is to let go of things that no longer serve me. We all have negative people or situations that hold us back and can turn us into something we don’t want to become if we allow them to. We may [...]
We're Hiring a Research Coordinator! Are you a scientist who absolutely loves the work that Dravet Syndrome Foundation (DSF) does, but is looking for a change from the lab environment? We have just the opportunity for you! We’re looking for a community-oriented scientist to direct DSF’s research efforts. DSF is inviting applications for a Research Coordinator. If you're interested, applications must be received before March 13, 2020. Interviews will take [...]
Special thanks to DSF Board President and Scientific Director, Nicole Villas, for sharing her perspective on the 2019 AES Meeting. _____________________________________________________________________________________________________________ The Dravet Syndrome Foundation´s 5 staff and 6 board members attended the American Epilepsy Society´s (AES) annual meeting in Baltimore, Maryland, from Dec. 5-9, 2019. As you read our newsletter and social media updates, you may wonder what all the fuss is about, and why we choose to [...]
Each December, the American Epilepsy Society (AES) meeting takes place in the U.S. As the largest gathering on epilepsy in the world, the AES Meeting is the event for epilepsy professionals in academia, clinical practice, industry, and advocacy. This was my 14th AES meeting, and I have had the unique opportunity to watch momentum building in the field over the years. But this year has been particularly exciting. Here [...]
Special thanks to DSF Board President and Scientific Director, Nicole Villas, for sharing an overview of the 2019 DSF Research Roundtable in this week's blog post. We are excited to be able to share the impact of our community's ongoing support! _____________________________________________________________________________________________________________ The Dravet Syndrome Foundation was honored to host our 10th annual Research Roundtable on Dec. 5, 2019, prior to the American Epilepsy Society Annual Meeting in Baltimore, [...]
DSF is dedicated to funding the highest caliber research on Dravet syndrome and associated epilepsies. Our focus is on research projects that will find new treatments and improve the quality of life for those living with an ion channel epilepsy. We places a high priority on funding research that has a clear path to genetic understanding, clinical application, and/or therapeutic development. Yesterday evening - at our 10th annual Research [...]