Decoding Dravet
Helping you to learn about the past, present, and future of Dravet syndrome and the Dravet Syndrome Foundation. This blog will keep you up to date on current research, treatment options, advocacy efforts, community activities, and other topics that are important to the Dravet syndrome community.
Strategic Plan Progress Report – Year 3
A strategic plan for a nonprofit acts as a blueprint to focus on what direction the organization will move in. It brings together the organization’s mission and strategy to help its constituents better understand what its priorities are and [...]
Surgery & Procedures in Dravet Syndrome
Patients with Dravet syndrome often require a surgery or other invasive procedure at some point in their life. While there are no specific surgical procedures that are specifically required due to the diagnosis of Dravet syndrome, there are some [...]
Join us for our 5th annual Day of Dravet workshops this October!
Each fall, DSF typically hosts five Day of Dravet regional workshops across the U.S. to bring our community together in person to learn about the latest in Dravet syndrome, connect with one another, and be a part of a [...]
Dravet Syndrome and COVID-19 Vaccination
As the COVID-19 pandemic continues, vaccination has become a major tool in combating the spread and mitigating the symptomatic infections caused by the novel coronavirus. Vaccination can be a topic of particular concern for individuals with Dravet syndrome (DS) [...]
Newly Diagnosed Patient Kits
When a family first receives a diagnosis of Dravet syndrome for their child, they may feel overwhelmed and unsure where to begin. Often your first instinct is to turn to the internet for more information. But with a rare [...]
Is epilepsy surgery for seizure control an option for individuals with Dravet syndrome?
DSF has received many questions about epilepsy surgery for patients with Dravet syndrome recently. If this is something you are considering for your child, it is crucial to know your options and to learn more about what we currently [...]