Decoding Dravet
Helping you to learn about the past, present, and future of Dravet syndrome and the Dravet Syndrome Foundation. This blog will keep you up to date on current research, treatment options, advocacy efforts, community activities, and other topics that are important to the Dravet syndrome community.
DSF Announces Funding for Five New Research Grants
Last night at their annual Research Roundtable Meeting, the Dravet Syndrome Foundation (DSF) announced funding for five new research grants. DSF is pleased to be funding grants that focus on important topics for individuals with Dravet syndrome, including investigation [...]
I’m Thankful for DSF and the Dravet Community
Thanksgiving is the perfect time to reflect on the year and what we are thankful for. While nobody’s life is perfect, those of us in the Dravet syndrome patient community definitely have our fair share of struggles and tough [...]
2022 DSF Biennial Conference
SAVE THE DATE! We are so excited to announce that we are planning our 5th DSF Biennial Conference on June 23-25, 2022, in collaboration with Cook Children’s Medical Center in Fort Worth, Texas. We are looking forward to finally [...]
2021 DSF Annual Campaign
DSF is built on the foundation of offering support and hope for patients and families living with Dravet syndrome. We have worked hard to engage our community stakeholders – including patient families, clinicians, researchers, and industry partners – to [...]
AAV-Mediated Gene Therapy for Developmental and Epileptic Encephalopathies Webinar Series for Professionals
Dravet Syndrome Foundation in collaboration with Encoded Therapeutics is offering an educational series for healthcare professionals, on AAV-Mediated Gene Therapy for Developmental and Epileptic Encephalopathies. Several years ago, gene therapy still seemed a distant possibility for Dravet syndrome and [...]
November is National Epilepsy Awareness Month!
November is recognized as National Epilepsy Awareness Month in the U.S. The Centers for Disease Control and Prevention (CDC) estimate that 3.4 million people in the U.S. are living with epilepsy. Many of those affected patients, such as those [...]
