Decoding Dravet
Helping you to learn about the past, present, and future of Dravet syndrome and the Dravet Syndrome Foundation. This blog will keep you up to date on current research, treatment options, advocacy efforts, community activities, and other topics that are important to the Dravet syndrome community.
DSF Announces 2020 Grant Recipients
The Dravet Syndrome Foundation (DSF) announced the 2020 grant awardees last night at the 11th annual Research Roundtable. DSF is excited to be funding two 2-year research grants and an additional 1-year postdoctoral fellowship. Following this year’s awards, DSF’s [...]
Helping to Move Research Forward
DSF was built around the need to fund Dravet syndrome-specific research in order to assure better treatment options and the best quality of life for our patient community. The founding members discovered that epilepsy research in general was underfunded [...]
Giving Thanks for DSF’s Community and Supporters
As Thanksgiving approaches, I am struck by the debt of gratitude I have for the many people - including patient families, clinicians, researchers, supporters, and organizations - that have enabled DSF to serve the Dravet syndrome community by funding [...]
Seizure Action Plan Coalition
The Dravet Syndrome Foundation, in collaboration with the Lennox-Gastaut Syndrome Foundation and the Tuberous Sclerosis Alliance, announced last week that they have launched the Seizure Action Plan (SAP) Coalition to educate people with epilepsy, their caregivers, and healthcare professionals [...]
Partners Against Mortality in Epilepsy Meeting 2020
Sudden Unexpected Death in Epilepsy (SUDEP) is a fatal complication of epilepsy, and a significant worry for the Dravet syndrome community. The precise cause of death in SUDEP is not yet understood. And while research is being done to [...]
National Epilepsy Awareness Month – November 2020
Epilepsy is one of the least understood of all neurological diseases, and yet it is the fourth most common neurological condition in the US. We know that one in 26 people will be diagnosed with epilepsy and that over [...]