Decoding Dravet
Helping you to learn about the past, present, and future of Dravet syndrome and the Dravet Syndrome Foundation. This blog will keep you up to date on current research, treatment options, advocacy efforts, community activities, and other topics that are important to the Dravet syndrome community.
DSF is looking for Board Members!
Are you looking for a way to truly have an impact on the future of Dravet syndrome? DSF is currently seeking professional, committed individuals who are passionate about finding a cure for Dravet syndrome for their Board of Directors. [...]
Join us at our Dravet Discussion Lounges at this Year’s Conference!
With our conference in a virtual format this year, we wanted to find a creative way to see and chat with one another until we can meet again in person next year. We will be hosting our Dravet Discussion [...]
2021 DSF Virtual Conference – June 24-26!
Join DSF to learn the latest on new treatments and research in the field of Dravet syndrome - in your home and on your schedule! Join us for our virtual conference on June 24-26 to watch live and participate [...]
2021 Dravet Syndrome Awareness Month
Your commitment and engagement as part of the DSF community has been instrumental in the progress that has been made for patients and families living with Dravet syndrome in the last decade. Now more than ever, we need your [...]
Join the Fight Challenge!
This year, we are encouraging our families and supporters to help us Fight Dravet by participating in a virtual fundraising event through June 30th You can participate in our Join the Fight Challenge by registering for free at www.fightdravet.org. [...]
We Want to Hear from You!
What makes a great rare disease community? Regardless of how you define community, there’s one common thread: people. The Dravet syndrome community is made up of patient families, as well as clinicians, researchers, industry partners, and other supporters. We [...]