Decoding Dravet
Helping you to learn about the past, present, and future of Dravet syndrome and the Dravet Syndrome Foundation. This blog will keep you up to date on current research, treatment options, advocacy efforts, community activities, and other topics that are important to the Dravet syndrome community.
2021 Dance for Dravet
We are excited to be hosting our first in-person event since the start of the pandemic! The Brennan Family will host their third annual Dance for Dravet, on Friday October 22, at the Third Degree Glass Factory in St [...]
2021 Day of Dravet – Featuring Experts from Our Community!
As mentioned in last week’s blog post we are very excited for this year’s Day of Dravet workshops which will consist of 5 sessions focused on topics important to caregivers. There will be a session held each Saturday of [...]
Brain First Parenting approach – a reflection from our newest staff member
It is such a pleasure to be a Guest Blogger this week! I am thrilled to be blogging as the newest member of the DSF Team, proudly serving as the Family Network Support Group Liaison. I’m here to [...]
Strategic Plan Progress Report – Year 3
A strategic plan for a nonprofit acts as a blueprint to focus on what direction the organization will move in. It brings together the organization’s mission and strategy to help its constituents better understand what its priorities are and [...]
Surgery & Procedures in Dravet Syndrome
Patients with Dravet syndrome often require a surgery or other invasive procedure at some point in their life. While there are no specific surgical procedures that are specifically required due to the diagnosis of Dravet syndrome, there are some [...]
Join us for our 5th annual Day of Dravet workshops this October!
Each fall, DSF typically hosts five Day of Dravet regional workshops across the U.S. to bring our community together in person to learn about the latest in Dravet syndrome, connect with one another, and be a part of a [...]