Decoding Dravet Blog2020-06-26T14:08:47-05:00

Decoding Dravet

Helping you to learn about the past, present, and future of Dravet syndrome and the Dravet Syndrome Foundation. This blog will keep you up to date on current research, treatment options, advocacy efforts, community activities, and other topics that are important to the Dravet syndrome community.

9April, 2021

Join the Fight!

By |April 9th, 2021|

Get ready for 2021 Dravet Syndrome Awareness Month this June! We invite you to JOIN THE FIGHT and show your support through our t-shirt fundraiser on Custom Ink, which runs from today through April 30th. Orders are estimated to [...]

2April, 2021

Guest Blog: Results from DSUK survey on the patient experience with COVID-19 vaccinations provides reassurance

By |April 2nd, 2021|

Our caregiver community has been anxious to learn about the experiences of patients with Dravet syndrome who have received the COVID-19 vaccination. Our friends at Dravet Syndrome UK (DSUK) recently surveyed their community to gather information on the [...]

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