Decoding Dravet Blog2019-05-10T15:11:55-05:00

Decoding Dravet

Decoding Dravet – Helping you to learn about the past, present, and future of Dravet syndrome and the Dravet Syndrome Foundation.

My name is Mary Anne Meskis. I am the Executive Director of the Dravet Syndrome Foundation and I have an adult son with Dravet syndrome. My blog will keep you up to date on current research, treatment options, advocacy efforts, community activities, and other topics that are important to the Dravet syndrome community.

17January, 2020

2020 DSF Conference Registration is Now Open!

By |January 17th, 2020|

Registration for the 4th biennial DSF Family & Professional Conference is open! We are excited to be partnering with Cook Children’s Medical Center in Fort Worth, Texas, and Dr. Scott Perry on this educational and inspiring event which will take place from June 18-20, 2020. It is designed to unite all groups committed to improving the lives of those with Dravet syndrome – including families, caregivers, medical professionals, researchers, [...]

10January, 2020

Letting go of things that do not serve you

By |January 10th, 2020|

I have never been someone who makes New Year’s resolutions, but this year I have decided to break that tradition. As a start to this new decade, my resolution is to let go of things that no longer serve me.   We all have negative people or situations that hold us back and can turn us into something we don’t want to become if we allow them to. We may [...]

3January, 2020

DSF is Hiring a Research Coordinator

By |January 3rd, 2020|

We're Hiring a Research Coordinator! Are you a scientist who absolutely loves the work that Dravet Syndrome Foundation (DSF) does, but is looking for a change from the lab environment? We have just the opportunity for you! We’re looking for a community-oriented scientist to direct DSF’s research efforts. DSF is inviting applications for a Research Coordinator. If you're interested, applications must be received before March 13, 2020. Interviews will take [...]

27December, 2019

What is the AES meeting, and why is there so much focus on it?

By |December 27th, 2019|

Special thanks to DSF Board President and Scientific Director, Nicole Villas, for sharing her perspective on the 2019 AES Meeting. _____________________________________________________________________________________________________________ The Dravet Syndrome Foundation´s 5 staff and 6 board members attended the American Epilepsy Society´s (AES) annual meeting in Baltimore, Maryland, from Dec. 5-9, 2019. As you read our newsletter and social media updates, you may wonder what all the fuss is about, and why we choose to [...]

20December, 2019

2019 American Epilepsy Society Meeting Recap

By |December 20th, 2019|

Each December, the American Epilepsy Society (AES) meeting takes place in the U.S. As the largest gathering on epilepsy in the world, the AES Meeting is the event for epilepsy professionals in academia, clinical practice, industry, and advocacy.   This was my 14th AES meeting, and I have had the unique opportunity to watch momentum building in the field over the years. But this year has been particularly exciting. Here [...]

13December, 2019

DSF Research Roundtable – 10th Anniversary!

By |December 13th, 2019|

Special thanks to DSF Board President and Scientific Director, Nicole Villas, for sharing an overview of the 2019 DSF Research Roundtable in this week's blog post. We are excited to be able to share the impact of our community's ongoing support! _____________________________________________________________________________________________________________ The Dravet Syndrome Foundation was honored to host our 10th annual Research Roundtable on Dec. 5, 2019, prior to the American Epilepsy Society Annual Meeting in Baltimore, [...]