Decoding Dravet Blog2020-06-26T14:08:47-05:00

Decoding Dravet

Helping you to learn about the past, present, and future of Dravet syndrome and the Dravet Syndrome Foundation. This blog will keep you up to date on current research, treatment options, advocacy efforts, community activities, and other topics that are important to the Dravet syndrome community.

21May, 2021

Join the Fight Challenge!

By |May 21st, 2021|

This year, we are encouraging our families and supporters to help us Fight Dravet by participating in a virtual fundraising event through June 30th You can participate in our Join the Fight Challenge by registering for free at www.fightdravet.org. [...]

14May, 2021

We Want to Hear from You!

By |May 14th, 2021|

What makes a great rare disease community? Regardless of how you define community, there’s one common thread: people. The Dravet syndrome community is made up of patient families, as well as clinicians, researchers, industry partners, and other supporters. We [...]

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