Below you’ll find resources from past Day of Dravet Workshops.
2020 Presentations
Jamie Zuckerman, PsyD
Licensed Clinical Psychologist
Caregiver Stress in the time of COVID
2019 Presentations
2019 Event Photos
All locations
Eric BJ Ségal, MD
Hackensack, NJ
Dravet Treatments and SUDEP
Patty McGoldrick, NP
Hackensack, NJ
Transition to Adulthood
Deborah Holder, MD
Los Angeles, CA
Dravet Syndrome Overview and SUDEP
Elizabeth Apollo, MEd
Hackensack, NJ
Practical Application of Behavior Management
Syndi Seinfeld, DO
Richmond, VA
Dravet Syndrome Overview and Available Treatments
Lawrence D Morton, MD
Los Angeles, CA
Research and Transition to Adulthood
Wendy Fry, FACE Director
All Locations
Dravet Syndrome Foundation – 10 Years of Progress
Fabio Nascimento, MD
Houston, TX
Dravet in Adults
Ariel Sherbany, MD, PhD
Hackensack, NJ
Dravet Syndrome Background
Hélio Pedro, MD
Hackensack, NJ
Genetics of Dravet Syndrome
Louis Dang, MD, PhD
Ann Arbor, MI
Dravet Syndrome Research Updates
Aimee Luat, MD
Ann Arbor, MI
Dravet Syndrome: Overview
Rachel H Fein, PhD, BCBA
Houston, TX
Behavioral Strategies for working with Individuals with Dravet Syndrome
Alicia M Goldman, MD, PhD
Houston, TX
SUDEP: Pathways, Biomarkers, and Opportunities for Therapeutic Interventions
Wendy Fry, FACE Director
All locations
Creating a Caregiver Action Plan
Nicole Villas, Board President
Mary Anne Meskis, Executive Director
All locations
Patient-Centered Outcomes Research Discussion
Raman Sankar, MD, PhD, FAAN, FAES
Los Angeles, CA
Emerging Treatments for Dravet Syndrome
Jason T Lerner, MD
Los Angeles, CA
6 Questions About Transitions in Dravet Syndrome
2018 Presentations
DSF Staff and Parent Ambassadors
All Locations
Learn about DSF history, programming, accomplishments, and goals
Annapurna Poduri, MD, MPH
Boston, MA
Learn about current research in Dravet syndrome
Scott Perry, MD
Fort Worth, TX
Treatment of Dravet Syndrome: Old Standbys and Emerging Therapies
Michelle Welborn, PhD
Chicago, IL
Obtaining Newly FDA Approved Drugs for Dravet Syndrome
Laurie Bailey & Carla Schad, MD
All Locations
Impact of Severe Childhood Epilepsy on Siblings
Russell P. Saneto, DO, PhD
Seattle, WA
Dravet Syndrome: “Thoughts in the night”
Robert Flamini, MD
Atlanta, GA
Dravet Syndrome Overview
Marcio Sotero De Menezes, MD
Seattle, WA
New Advances in the Treatment of Dravet
Brad and Karen Thompson
Fort Worth, TX
Maintaining Relationships while Caring for a Child with Special Needs
Nicole Villas
Mary Anne Meskis
Michelle Welborn, PhD
All Locations
Newly approved Drugs in Dravet Syndrome
Amanda Stansfield
Seattle, WA
Health and Wellness for the Caregiver
Mary Anne Meskis
Nicole Villas
All Locations
Patient-Centered Outcomes Research
Links
- Transition Resources
- Dravet Registries
- Education Resources for Dravet
- ClinicalTrials.Gov
- Draccon – Dravet Pipeline
- Danny Did Foundation
- Provides funding for monitoring devices
- Disney Accessibility Passes
- Service Animals
- North American Treatment Consensus