When Anna Odlaug of Chicago was diagnosed with Dravet syndrome in 2018 the Dravet Syndrome Foundation (DSF) provided support to the family.
Grandfather Ted Odlaug decided to help support the mission of DSF through fundraising and is now a member of the board. Soon his extended family got involved in increasing awareness through their own fundraising campaigns. In 2019 the family led by James (Jimmy) Brennan (President of McKelvey Homes In St. Louis, Mo) and Kathy Brennan McGuire, siblings of Anna’s grandmother Pat, wanted to help and as a result organized the first Dance for Dravet in St. Louis. It was a great success and they raised over $183,000 for the foundation. Details and photos from 2019 are available at this link.
In 2020, Jimmy took the lead in organizing a 2nd Dance for Dravet that was been postponed due to the COVID pandemic. In spite of the postponement over $171,000 in sponsorships and donations was received.
We were able to reschedule our 2020 event for October 22, 2021. The majority of our sponsors opted to donate again or even increase their sponsorship, bringing the total raised for all 3 Dance for Dravet events to over $541,00 and counting!
Please check the dance website to purchase tickets or make a donation at www.dancefordravet.org.