#MemberMonday

By |2019-06-24T09:55:32-05:00June 24th, 2019|Categories: Uncategorized|

Meet West Coast Parent Ambassador, Karen Masters Foster! This #MemberMonday meet West Coast Parent Ambassador, Karen Masters Foster! Karen lives in Northridge, CA with her husband Jermaine and their 4 children, Audrey, Miles, Clover and Scarlet. Miles was 2 yrs old when genetic testing revealed he had an SCN1A mutation. Though initially diagnosed with [...]

#MemberMonday

By |2019-05-17T13:40:17-05:00June 17th, 2019|Categories: Our Community, Uncategorized|

Meet Southeast Region Parent Ambassador, Kimberly Brorson! This #MemberMonday meet Southeast Parent Ambassador, Kimberly Brorson! Kimberly resides in Fredericksburg, VA with her husband Bendik, Dravet child Lucy, Amelia and twin girls Madeline and Elise. Post Dravet diagnosis for Lucy, Kimberly took leave as a commercial pilot to be a full time care taker for [...]

#MemberMonday

By |2019-05-17T13:52:55-05:00June 10th, 2019|Categories: Our Community, Uncategorized|

Meet Midwest Region Parent Ambassadors, Kathy and Bob Dodd! This #MemberMonday meet Midwest Parent Ambassadors, Kathy and Bob Dodd! Bob and Kathy live in a suburb of Chicago with their 2 daughters, Cameron and Stacy. Stacy, now age 20, had her first seizure in January 1999 and was diagnosed with Dravet Syndrome in August [...]

#MemberMonday

By |2019-05-17T13:12:57-05:00June 3rd, 2019|Categories: Our Community, Uncategorized|

Meet Mountain Region Parent Ambassador, Lynne Howard! This #MemberMonday meet Mountain Region Parent Ambassador: Lynne Howard! Lynne lives in the North Texas area with her husband Elliot, and two daughters Elina and Elissa.  Elissa is their youngest daughter,  diagnosed with Dravet Syndrome in 2012 after genetic testing confirmed SCN1A gene mutation. After taking time off [...]

Get Connected

By |2019-05-30T20:44:18-05:00May 30th, 2019|Categories: Uncategorized|

Get Connected with DSF on our social media channels Then watch each day in the month of June for our Not Today Dravet posts and share to raise awareness! Facebook:  @DravetSyndromeFoundation Twitter:  @curedravet Instagram:  @dravetsyndromefoundation YouTube:  https://www.youtube.com/channel/UC4z8dwjuGJc3hMLyGuk8xhw

Add a Facebook Frame

By |2019-05-31T08:39:59-05:00May 30th, 2019|Categories: Uncategorized|

Add a DSF Facebook Frame to your profile picture to help raise awareness! The 2019 awareness frames are available at these links: www.facebook.com/profilepicframes/?selected_overlay_id=2059001997736675 www.facebook.com/profilepicframes/?selected_overlay_id=731750760573867 www.facebook.com/profilepicframes/?selected_overlay_id=455767508327043 www.facebook.com/profilepicframes/?selected_overlay_id=365125517685743 www.facebook.com/profilepicframes/?selected_overlay_id=455767508327043 www.facebook.com/fbcameraeffects/tryit/467068077376266/ (for Facebook stories) To find all past & current frames: Go to facebook.com/profilepicframes. Click your profile picture in the bottom left and select your Page. Search for [...]

Facebook Live Sessions: June 17-23, 2019

By |2019-06-01T12:09:32-05:00May 30th, 2019|Categories: Uncategorized|

Schedule All sessions begin at 8pm ET Date Presentation Monday, June 17 Learn about the programs and patient community that make up DSF  - Includes an overview of Dravet syndrome and a live Q&A Tuesday, June 18 Learn about programs & tools that can help you manage living with Dravet syndrome - Includes a [...]

#MemberMonday

By |2019-05-17T13:34:14-05:00May 27th, 2019|Categories: Our Community, Uncategorized|

Meet West Coast Parent Ambassador, Morgan Turpin! This #MemberMonday meet West Coast Parent Ambassador: Morgan Turpin! Morgan lives just north of San Diego with her husband Sean and their son and daughter. Their oldest, Shayne (now 6), was diagnosed with a mutation in the SCN1A gene when he was fourteen months old. It would [...]

#MemberMonday

By |2019-05-17T13:34:36-05:00May 20th, 2019|Categories: Our Community, Uncategorized|

Meet Mountain Region Parent Ambassador, Gloria Rodriguez! This #MemberMonday meet Mountain Parent Ambassador Gloria Rodriguez! Gloria lives in Pasadena, TX with her husband Ascension and two daughters Madlyn (16) and Grace (5). Grace was diagnosed with Dravet syndrome at 14 months old after a genetic test confirmed an SCN1A gene mutation. Gloria and her [...]

#MemberMonday

By |2019-05-13T08:58:01-05:00May 12th, 2019|Categories: Our Community, Uncategorized|

Meet Midwest Parent Ambassador, Tina McDermott! This #MemberMonday meet Midwest Parent Ambassador: Tina McDermott! Tina and her husband Brad have six children. Their youngest, Ryan, was diagnosed with Dravet Syndrome in 2012 at the age of six. Through fierce advocacy Tina was able to get Ryan the testing he needed to see the proper [...]