Our Super Siblings Sessions will take place each Saturday in October from at 12:00pm-1:30pm ET. While parents and caregivers are attending the Day of Dravet sessions, Laurie Bailey from Zogenix will host our Super Sibling sessions to bring our amazing siblings together to connect and of course, have lots of fun! Siblings will have the [...]
Our Day of Dravet workshop on Saturday, October 23, beginning at 12:00pm ET, will focus on sessions that will be helpful for families who have an adult patient with the diagnosis of Dravet syndrome. Learn about topics surrounding transition and future planning. Sessions are presented by community experts - including other parents. Time [...]
Our Day of Dravet workshop on Saturday, October 30, beginning at 12:00pm ET, will focus on sessions that will be helpful for families who are new to the diagnosis of Dravet syndrome. Learn about topics you have heard about and get accurate information to help you make confident and appropriate decisions on what will be [...]
Our Day of Dravet workshops on Saturday, October 2nd, 9th, and 16th, beginning at 12:00pm ET, will offer a 9-hour workshop on behavior (broken into three, three-hour sessions), that will teach Brain First Parenting. Why 'Brain First'? What does the brain have to do with challenging behaviors? Everything, actually. Neuroscience research tells us that the [...]
Learn more about the 24 Hour World Time Trial Championship WTTC Fun Facts: Borrego Springs, CA - Located in Southern California Anza-Borrego Desert 60 metal sculptures by Ricardo Brecada 6, 12 & 24 Hour Race (Dan will be racing for 24) 95 Participants in 24 Hour Solo Race (77 Men & 18 Women representing 14 [...]
Race Across America (RAAM) is one of the most respected and longest running ultra-endurance events in the world. RAAM is seen as a pinnacle of athletic achievement not only in cycling circles but the greater sporting community as well. In 1982, four individuals raced from the Santa Monica Pier in Los Angeles to the Empire [...]
Sparkling Grape Lemonade (mocktail) 1 can 295mL Minute Maid® Grape Punch frozen concentrate, thawed (undiluted) 1 can 295mL Minute Maid® Lemonade frozen concentrate, thawed (undiluted) 3 cups Sprite® Sparkling Beverage 2 cups Water Mix concentrates, Sprite, and water in a large pitcher. Serve over ice.
Blackberry Mint Moscow Mule (cocktail or mocktail) 2 14 oz. bottles of ginger beer 1 cup water 1 cup blackberries, plus more for garnish 1/2 cup mint leaves, plus more for garnish 2 limes, sliced, plus more for garnish For the simple syrup: 1/2 cup water 1/2 cup raw honey 2” piece fresh ginger, sliced To make the simple syrup, bring the [...]