Great friends of Logan's family, the Seabolt's hosted a lemonade stand called "Lemonade for Logan". In just a few hours of hard work selling cookies and lemonade, these 4 amazing kids raised $630 for the Dravet Syndrome Foundation to help find a cure for Logan and other kids battling Dravet syndrome and Epilepsy. A big thank you to [...]
Two young girls, Ella Juarez and Avery Cooper, who live on Scarlett’s street held a bake sale in her honor to raise funds for Dravet Syndrome Foundation. Their generosity and kind spirits help to raise $764! They are aiming to raise over $1,000 next year!
Suttondale Subdivision in Frankfort, IL organized the Annual Subdivision Charity Softball Challenge. Trey Gryga is an 11 year old boy who lives in the Suttondale Subdivision and unfortunately was diagnosed with Dravet when he was 3 months old. We decided to make the Dravet Syndrome Foundation the beneficiary for our charity event. With lots of [...]
Khloe was diagnosed with complex partial seizure disorder when she was 16 months old. Although her doctors believe she had seizures as early as six months, given her EEGs. A year ago her diagnosis changed when her Neurology team found a rare genetic mutation that linked her seizures to Dravet syndrome. Dravet syndrome is a rare [...]
We began having these benefits four years ago to raise awareness in our community, and to do everything we can to contribute to research so that a cure can be found for our son. He is the most important thing in our lives, and we will do anything we can to help give him a better [...]
The Goddard School & its parent community organized a fundraiser in honor of Ella. Her sister, Clara, is in the Pre-K classroom and the school wanted to help raise awareness and funds for the Dravet Syndrome Foundation. Over a two week period, they sold butterflies of all colors, which were hung in their foyer as [...]
Thrivent Financial’s Employee Volunteer Team held a Misfit Gift sale on January 19, 2015. They sold new, unwanted gifts items from the holidays, donated by their corporate employees. Sales proceeds and cash contributions totaled $226.33 from the sale, and were matched by Thrivent Financial, with a check for $452.66 being sent to the Dravet Syndrome Foundation in [...]