Upcoming EL-PFDD Meeting February 3rd!
Upcoming EL-PFDD Meeting February 3rd!
2021 Facebook Birthdays We set ourselves a sizable goal in 2021 of raising $100K for Facebook Birthdays! Thanks to everyone that used their birthday as a way to spread awareness and raise funds. While we were just shy of reaching our $100k goal, over 300 individuals still raised an incredible $96k!!! Every gift, [...]
Meet Scott Baraban, PhD In this Researcher Spotlight meet DSF’s Scientific Advisory Board (MAB) member, Scott Baraban, PhD. Dr. Baraban studies Dravet syndrome using zebrafish, and his laboratory’s work has led to advancements in drug discovery and repurposing for Dravet syndrome. DSF funded Dr. Baraban’s zebrafish drug screens through our grants program in 2011, and [...]
Meet Elaine Wirrell, MD In this Researcher Spotlight meet DSF's Medical Advisory Board (MAB) member, Elaine Wirrell, MD. Dr. Wirrell is passionate about improving the lives of children with epilepsy, appreciating the tremendous impact this condition has on the entire family, and the critical importance of addressing seizures and comorbidities. Last month, Dr. [...]
Meet Kendra R. Mulholland, DNP, MSN, APRN-CNP Meet Kendra R. Mulholland, DNP, MSN, APRN-CNP In this Community Spotlight, meet Kendra R. Mulholland, DNP, MSN, APRN-CNP! Dr. Kendra Mulholland is a board-certified Family Nurse Practitioner licensed by the Ohio Board of Nursing and certified by the American Association of Nurse Practitioners. She is the [...]
Meet The Odlaug, Nusslock and Brennan Families Community Spotlight, meet The Odlaug, Nusslock, and Brennan Families and join us in thanking and congratulating them on reaching their fundraising goal of $1 million for DSF! Andrew and Kimberly Odlaug blessed their family in September 2017 with the birth of Anna Grace. Anna was diagnosed [...]
Meet Lori Isom, PhD In this Researcher Spotlight meet DSF's Scientific Advisory Board (SAB) Co-Chair, Lori Isom, PhD. As a SAB member, Lori reviews and approves all research grant applications and meets annually with other interested researchers and scientists to discuss innovative and promising research in the field of Dravet syndrome and associated [...]
Meet Dan Hartley, his daughter Bri, and McCall! In this Community Spotlight meet Dan Hartley and learn about his new multi-year fundrasising and awareness event – Miles for McCall! Dan Hartley is a 49-year-old, US Navy Veteran and business owner, who is a former semi-professional ultra-runner who has competed in numerous ultramarathons and 100-mile [...]
DSF is looking for new board members! Are you looking for a way to truly have an impact on the future of Dravet syndrome? DSF is currently seeking professional, committed individuals who are passionate about finding a cure for Dravet syndrome for their Board of Directors. Board positions are a voluntary, three-year term [...]
Meet Sarah and Avery! In this Community Spotlight meet Sarah Lango and her daughter Avery. For Dravet Awareness month, Sarah reached out to several local businesses in her small town to raise awareness for Dravet syndrome and Avery’s journey. Each business handed out brochures and postcards. In many cases, businesses donated a portion [...]
Remembering those we have lost In this Community Spotlight we honor those that we have lost to Dravet syndrome. Evan Nicholas Bartley Zackary Blake Bell Tanner Berry Gabrielle Alexis Berryman Ella Elizabeth Brearley Megan Alexandra Buss Dawson Luke Causey Bethany Childers Yotom Cohen Scott C. Crossland Clover Dohman Tyler Francis Eimont Charlotte [...]
