Meet Heather & Luella! In this month’s Community Spotlight meet Heather Johnson and her Dravet Warrior, 11-year-old Luella. Heather and Luella have helped spread awareness and raise funds for DSF over the years in a variety of ways. One of the most notable ways is their annul campaign, a cake 4 a cure. [...]
Finding Resilience Through Reframing: Parents' Perspectives As a Dravet parent or caregiver, have you ever thought about the term “reframing?” Community member Barbara Swoyer recently wrote about the concept of reframing for the latest issue of NIH MedLine Plus magazine. In this piece, Barbara incorporated the thoughts of others in the Dravet community about what [...]
Meet David and Natasha! This #MemberMonday meet David and Natasha! David Fischer is a 16-year-old high school student who lives in Newtown, Massachusetts with his parents and 3 siblings. His favorite subject in school is math, and he is a competitive swimmer and Rubik’s cuber as well as an avid chess player. He [...]
2020 Facebook Birthday Thanks We set ourselves a sizable goal in 2020 of raising $100K for Facebook Birthdays! Thanks to everyone that used their birthday as a way to spread awareness and raise funds. We not only met our goal, but we have surpassed that goal by over $9K!!! Every gift, no matter [...]
Thank You Dunkin' Joy in Childhood Foundation! Dunkin' Enfield franchise owner Jack Cadigan and The Dunkin' Joy in Childhood Foundation presented DSF staff member, Jenny Gallo, with a check for $5,000 in honor of the grand reopening of the Dunkin' Enfield, CT location. Jack nominated DSF for a grant in honor of his [...]
Meet Rykers Rally! This #MemberMonday meet Rykers Rally! Ryker was diagnosed with Dravet syndrome when he was 8 months old. It was a bittersweet moment for his parents, Erika and Ryan. Although they finally had a diagnosis, they were overwhelmed as they learned more and more about his diagnosis. Erika says, "I've often [...]
Meet Jim Brennan! This #MemberMonday meet Jim Brennan! James G. Brennan is the owner and President of McKelvey Homes, St. Louis’s oldest and most established homebuilding company. With more than 35 years of experience in real estate, construction and homebuilding, Jim is well-known for his community service and his activities on behalf of [...]
Meet Noah & The Zack Pack! This #MemberMonday meet Noah and The Zach Pack! Noah's brother, Zack, has Dravet syndrome and requires full care for just about everything. Zach shares, "This has affected my family's life in both small and big ways. Small as in tucking our chairs all the way in when [...]
Meet Zachary & Octane Toy Box! This #MemberMonday meet Dravet Superhero Zachary and Octane Toy Box! Octane Toy Box hosted the 4th Annual UTV Social Charity Fundraiser on August 16th, in Arlington, WA. The fundraiser was a huge success. They raised $2,000 for DSF while spreading much needed awareness. From the entire Dravet [...]
Meet Addyson & Braxtin! This #MemberMonday meet Addyson and her brother, Braxtin. Addison wrote us this really sweet letter and we just had to share it with our community! Hello, my name is Addyson Gruber and I wanted to share some pretty exciting news with you all at the Dravet Syndrome Foundation. Back [...]
