Meet Zachary & Octane Toy Box! This #MemberMonday meet Dravet Superhero Zachary and Octane Toy Box! Octane Toy Box hosted the 4th Annual UTV Social Charity Fundraiser on August 16th, in Arlington, WA. The fundraiser was a huge success. They raised $2,000 for DSF while spreading much needed awareness. From the entire Dravet [...]
Meet Addyson & Braxtin! This #MemberMonday meet Addyson and her brother, Braxtin. Addison wrote us this really sweet letter and we just had to share it with our community! Hello, my name is Addyson Gruber and I wanted to share some pretty exciting news with you all at the Dravet Syndrome Foundation. Back [...]
Meet our new Research Coordinator, Veronica Hood, PhD! Welcome to Our New Staff Member! We are so excited to welcome Veronica Hood, PhD, to DSF as our new Research Coordinator. Veronica has an MS in Biology from East Tennessee State University and a PhD in Cell, Stem Cell, and Developmental Biology from the University [...]
Welcome New Board Members Welcome to Our New Board Members! Please join us in welcoming our two newest board members, Ashley Kerns and Dr. Joseph Sullivan, who officially began their terms on April 1, 2020. Ashley resides in Westlake, Louisiana with her three children, Michael (age 9), Samuel (age 6), and Katie (age 1). Katie was [...]
Meet Tina & Ryan! This #MemberMonday meet Ryan and his mom, Tina McDermott. Tina is an active member in the Dravet syndrome community. She serves as a DSF Family Ambassador in the midwest region and also as a DSF Social Ambassador. Her youngest son, Ryan, was diagnosed with Dravet syndrome in 2012 at [...]
Zogenix Offers New Website Shine Forward With Dravet is brought to you by Zogenix, Inc. Shine Forward With Dravet is a website dedicated to sharing resources and inspiration for families living with Dravet syndrome. Whether you are a parent, sibling, friend, or other family member of someone with Dravet syndrome, Shine Forward With [...]
COVID-19 & DSF Conference Update Our team at DSF understands that this is a frightening and uncertain time for our patient families with the spread of coronavirus (COVID-19) in the U.S. We are continuing to monitor COVID-19 via the Centers for Disease Control and Prevention (CDC) and the World Health Organization (WHO). At [...]
Ciara's Spirit of Hope Award Nominations Nominations are now open for the 2020 Ciara's Spirit of Hope Award! From 2010-2015 the Spirit of Hope award was presented annually to volunteers at DSF’s annual gala, Ciara’s Butterfly Bash. It recognized parents, siblings, and volunteers whose dedication through service to DSF is truly outstanding and inspiring. Ciara’s Butterfly [...]
2019 Facebook Birthday Thanks We set ourselves a sizable goal in 2019 of raising $100K for Facebook Birthdays! Thanks to everyone that used their birthday as a way to spread awareness and raise funds. We not only met our goal, but we have surpassed that goal by over $27K!!! Every gift, no matter [...]
A Year of Thanks We have put our heads together to confront the many problems faced by the Dravet syndrome community and together we have done so much. You’ve stood with us along the way. These changes have happened through the unity and support of our community and because of YOU. You Bashed. [...]
