5K for Dravet: Denver

By |2019-07-15T19:41:08-05:00July 16th, 2019|Categories: Events|

2019 Steps Toward a Cure: Denver, CO Join us for a fun, family-friendly event that includes a professioanl timed 5k run, 1 mile walk and family fun day at 5K for Dravet: Colorado on Sunday, August, 11, 2019 5K for Dravet: Colorado was started in 2013 by the Craner Family in honor of [...]

June is Awareness Month

By |2019-06-18T14:00:51-05:00June 15th, 2019|Categories: Events|

Dravet Awareness Month YOU ASKED AND WE LISTENED! DSF is offering a lot of great opportunities for education, advocacy, and support. We're also expanding our support to the entire community, beyond just our support groups. Every Friday from through June 28, we will feature guest blogs by parents sharing their family’s journey with [...]

Steps: Lowell

By |2019-05-15T10:19:56-05:00May 15th, 2019|Categories: Events|

2019 Steps Toward a Cure: Lowell, MA Join 14 year old event host Becca for a fun, family-friendly event that includes a 1-2 mile walk, lunch, kids' activities and a raffle at Steps Toward a Cure: Lowell, MA At 9 months old Isaias was placed with his forever family while his half sister, [...]

Boston Bets

By |2019-05-13T14:01:04-05:00April 15th, 2019|Categories: Events|

2019 Double Down Beantown - Boston Bets Against Dravet Join us for a night of fun & giving at our inaugural Boston event - Double Down Beantown - Boston Bets Against Dravet We are excited to announce our Gala Honoree - Dr. Elizabeth A. Thiele, MD, PHD. Dr. Thiele is a neurologist and [...]

City Bash

By |2019-05-13T14:09:59-05:00March 15th, 2019|Categories: Events|

2019 City Bash Join us for a night of food, fun & fundraising at this unique and intimate venue in NYC - make sure to get your tickets before we sell out! Kate Hintz and Curtis Jones are this year's gala hosts. Their daughter, Morgan, was diagnosed with Dravet syndrome in 2011. Since then, [...]