Double Down for Dravet: H-Town

By |2020-01-15T10:00:08-05:00January 15th, 2020|Categories: Events|

2020 Double Down for Dravet: H-Town Join us for a night of fun & fundraising at Double Down for Dravet: H-Town. Taking place at Armadillo Palace in Houston, the evening includes appetizers, dinner, drinks, casino games, and silent and live auctions. Tickets are now on sale for $100 per person. Purchase your tickets [...]

2019 Annual Campaign

By |2019-12-16T11:40:47-05:00December 17th, 2019|Categories: Events|

2019 Annual Campaign We hope you will join us as a supporter at DSF’s Annual Campaign and help us achieve our fundraising goal of $175,000. There are 2 easy ways you can give today: Online at www.dsfannualcampaign.org By mail, to DSF, PO Box 3026, Cherry Hill, NJ 08034 Please know that our community [...]

Will You Dash for Dravet?

By |2019-11-14T09:49:27-05:00November 15th, 2019|Categories: Events|

Dash for Dravet on Turkey Day: Virtual Event Before the feast, get your family and friends together for our 4th Annual Dash for Dravet on Turkey Day! This is a virtual 5K so it can be accomplished anywhere in the United States Run, walk, jog, roll or treadmill at your pace. Burn off calories before [...]

Double Down Philadelphia

By |2019-10-18T14:13:33-05:00September 15th, 2019|Categories: Events|

2019 Double Down for Dravet: Philadelphia Join us for a night of fun & fundraising at Double Down for Dravet: Philadelphia Taking place at Mitten Hall at Temple University, the evening includes appetizers, dinner, drinks, 3 hours of casino games, silent and live auctions. Tickets are now on sale for $100 per person. [...]

Double Down for Dravet

By |2019-08-12T15:58:37-05:00August 15th, 2019|Categories: Events|

2019 Double Down for Dravet: Frisco, TX Join us for a night of fun & fundraising at the original Double Down for Dravet in Frisco, Texas Taking place at Toyota Stadium, the evening includes appetizers, dinner, drinks, 3 hours of casino games by Aces Wild, and silent and live auctions. Tickets are now [...]

5K for Dravet: Denver

By |2019-07-15T19:41:08-05:00July 16th, 2019|Categories: Events|

2019 Steps Toward a Cure: Denver, CO Join us for a fun, family-friendly event that includes a professioanl timed 5k run, 1 mile walk and family fun day at 5K for Dravet: Colorado on Sunday, August, 11, 2019 5K for Dravet: Colorado was started in 2013 by the Craner Family in honor of [...]

June is Awareness Month

By |2019-06-18T14:00:51-05:00June 15th, 2019|Categories: Events|

Dravet Awareness Month YOU ASKED AND WE LISTENED! DSF is offering a lot of great opportunities for education, advocacy, and support. We're also expanding our support to the entire community, beyond just our support groups. Every Friday from through June 28, we will feature guest blogs by parents sharing their family’s journey with [...]

Steps: Lowell

By |2019-05-15T10:19:56-05:00May 15th, 2019|Categories: Events|

2019 Steps Toward a Cure: Lowell, MA Join 14 year old event host Becca for a fun, family-friendly event that includes a 1-2 mile walk, lunch, kids' activities and a raffle at Steps Toward a Cure: Lowell, MA At 9 months old Isaias was placed with his forever family while his half sister, [...]

Boston Bets

By |2019-05-13T14:01:04-05:00April 15th, 2019|Categories: Events|

2019 Double Down Beantown - Boston Bets Against Dravet Join us for a night of fun & giving at our inaugural Boston event - Double Down Beantown - Boston Bets Against Dravet We are excited to announce our Gala Honoree - Dr. Elizabeth A. Thiele, MD, PHD. Dr. Thiele is a neurologist and [...]