Dance for Dravet St. Louis

By |2021-09-15T09:43:43-05:00September 16th, 2021|Categories: Events|

Dance for Dravet Join us for a night of fun & fundraising at Dance for Dravet in Honor of Anna. Taking place at Third Degree Glass Factory in St. Louis, Missouri, the evening includes appetizers, dinner, drinks, dancing, and silent and live auctions. Tickets are now on sale for $100 per person. Purchase [...]

Virtual Steps Toward a Cure

By |2021-08-12T08:26:36-05:00August 16th, 2021|Categories: Events|

Steps Toward a Cure Virtual Walk Mark your calendars and join DSF for our virtual Steps Towards a Cure event! In place of our annual walk and race events we have put together a virtual 1 mile walk, family stroll, or run across the United States that everyone can participate in! Register now [...]

Last Call to Party in Your PJs

By |2021-07-15T10:10:47-05:00July 15th, 2021|Categories: Events|

Last Call to Party in Your PJs for Dravet! It's not too late!  Register by Friday, July 16th to receive your party pack in time! Mark your calendars and join DSF on July 24th to Party in Your PJs for Dravet. We decided to bring this virtual interactive pajama party back for 2021 and YOU are [...]

Dravet Photo Diary

By |2021-07-14T13:04:57-05:00July 15th, 2021|Categories: Events|

Dravet Photo Diaries Contest Zogenix is hosting a Photo Diary charitable campaign and contest on Facebook. For every “Like” or share of a photo, Zogenix will donate $25 to both Dravet Syndrome Foundation and Epilepsy Foundation, up to $50,000 in total. At the end of the campaign on July 19, the family’s submission [...]

June is Awareness Month

By |2021-06-09T12:40:47-05:00May 17th, 2021|Categories: Events|

#fightdravet June is Dravet Syndrome Awareness month and June 23rd is International Dravet Syndrome Awareness Day. This year, we are recognizing those that we have lost on our first annual Remembrance Day, June 15th. By raising awareness of Dravet syndrome, our community can increase knowledge in the general public; improve early diagnosis; assure [...]

Remembrance Day

By |2021-05-17T19:03:55-05:00May 17th, 2021|Categories: Events|

Dravet Remembrance Day Beginning in 2021, each year DSF will recognize June 15th as Dravet Remembrance Day to allow us to remember all of those who we have lost to this disease. Bereaved families are invited to share the names of their deceased loved ones who have passed away as a result of [...]

Will You Give Up Your Cup?

By |2021-03-16T15:29:44-05:00March 16th, 2021|Categories: Events|

Give Up Your Cup Each March, DSF challenges you to Give Up Your Cup. This annual virtual fundraiser asks you to give up your coffee, tea or other “cup” for one day, one week, one month or anything in between, then donate what you would have spent to DSF. You can help to [...]

2020 Annual Campaign

By |2020-12-15T11:36:05-05:00December 15th, 2020|Categories: Events|

2020 Annual Campaign We hope you will join us as a supporter at DSF’s Annual Campaign and help us achieve our fundraising goal of $100,000. There are 2 easy ways you can give today: Online at By mail, to DSF, PO Box 3026, Cherry Hill, NJ 08034 Please know that our community [...]

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