Upcoming EL-PFDD Meeting February 3rd!
Upcoming EL-PFDD Meeting February 3rd!
2021 Annual Campaign We hope you will join us as a supporter at DSF’s Annual Campaign and help us achieve our fundraising goal of $150,000. There are 2 easy ways you can give today: Online at www.dsfannualcampaign.org By mail, to DSF, PO Box 3026, Cherry Hill, NJ 08034 Please know that our community [...]
Meet Kendra R. Mulholland, DNP, MSN, APRN-CNP Meet Kendra R. Mulholland, DNP, MSN, APRN-CNP In this Community Spotlight, meet Kendra R. Mulholland, DNP, MSN, APRN-CNP! Dr. Kendra Mulholland is a board-certified Family Nurse Practitioner licensed by the Ohio Board of Nursing and certified by the American Association of Nurse Practitioners. She is the [...]
Dash for Dravet: Virtual Event Thanksgiving Day is just 10 days away! Here is your chance to get your family and friends together for our 5th annual Dash for Dravet on Turkey Day, and help raise funds to further research in Dravet syndrome and support the important programs of DSF! We are [...]
Steps Toward a Cure: Atlanta After having to make the tough decision to cancel all-in person events last year, we are excited to have finally had our first in-person event since February 22, 2020. On Saturday, October 16,11 Dravet families joined friends and family for Steps Toward A Cure: Atlanta. This 1 mile [...]
Dash for Dravet: Virtual Event Here is your chance to get your family and friends together for our 6th annual Dash for Dravet on Turkey Day, and help raise funds to further research in Dravet syndrome and support the important programs of DSF! This virtual 5K can be accomplished anywhere in the [...]
Dance for Dravet Join us for a night of fun & fundraising at Dance for Dravet in Honor of Anna. Taking place at Third Degree Glass Factory in St. Louis, Missouri, the evening includes appetizers, dinner, drinks, dancing, and silent and live auctions. Tickets are now on sale for $100 per person. Purchase [...]
Steps Toward a Cure Virtual Walk Mark your calendars and join DSF for our virtual Steps Towards a Cure event! In place of our annual walk and race events we have put together a virtual 1 mile walk, family stroll, or run across the United States that everyone can participate in! Register now [...]
Last Call to Party in Your PJs for Dravet! It's not too late! Register by Friday, July 16th to receive your party pack in time! Mark your calendars and join DSF on July 24th to Party in Your PJs for Dravet. We decided to bring this virtual interactive pajama party back for 2021 and YOU are [...]
Dravet Photo Diaries Contest Zogenix is hosting a Photo Diary charitable campaign and contest on Facebook. For every “Like” or share of a photo, Zogenix will donate $25 to both Dravet Syndrome Foundation and Epilepsy Foundation, up to $50,000 in total. At the end of the campaign on July 19, the family’s submission [...]
Party in Your PJs for Dravet! Mark your calendars and join DSF on July 24th to Party in your PJs for Dravet! We decided to bring this virtual interactive pajama party back and YOU are on our guest list! Join us for an evening of entertainment from your living room. There will be [...]
