Last Call to Party in Your PJs for Dravet! It's not too late! Register by Friday, July 16th to receive your party pack in time! Mark your calendars and join DSF on July 24th to Party in Your PJs for Dravet. We decided to bring this virtual interactive pajama party back for 2021 and YOU are [...]
Dravet Photo Diaries Contest Zogenix is hosting a Photo Diary charitable campaign and contest on Facebook. For every “Like” or share of a photo, Zogenix will donate $25 to both Dravet Syndrome Foundation and Epilepsy Foundation, up to $50,000 in total. At the end of the campaign on July 19, the family’s submission [...]
Party in Your PJs for Dravet! Mark your calendars and join DSF on July 24th to Party in your PJs for Dravet! We decided to bring this virtual interactive pajama party back and YOU are on our guest list! Join us for an evening of entertainment from your living room. There will be [...]
#fightdravet June is Dravet Syndrome Awareness month and June 23rd is International Dravet Syndrome Awareness Day. This year, we are recognizing those that we have lost on our first annual Remembrance Day, June 15th. By raising awareness of Dravet syndrome, our community can increase knowledge in the general public; improve early diagnosis; assure [...]
Dravet Remembrance Day Beginning in 2021, each year DSF will recognize June 15th as Dravet Remembrance Day to allow us to remember all of those who we have lost to this disease. Bereaved families are invited to share the names of their deceased loved ones who have passed away as a result of [...]
Order now for Dravet Awareness Month! Get ready for 2021 Dravet Syndrome Awareness Month this June! We invite you to JOIN THE FIGHT and show your support through our t-shirt fundraiser on Custom Ink, which runs through April 30th. Orders are estimated to ship around May 18th to assure you have them in [...]
Give Up Your Cup Each March, DSF challenges you to Give Up Your Cup. This annual virtual fundraiser asks you to give up your coffee, tea or other “cup” for one day, one week, one month or anything in between, then donate what you would have spent to DSF. You can help to [...]
2020 Annual Campaign We hope you will join us as a supporter at DSF’s Annual Campaign and help us achieve our fundraising goal of $100,000. There are 2 easy ways you can give today: Online at www.dsfannualcampaign.org By mail, to DSF, PO Box 3026, Cherry Hill, NJ 08034 Please know that our community [...]
Dash for Dravet: Virtual Event Thanksgiving Day is just 10 days away! Here is your chance to get your family and friends together for our 5th annual Dash for Dravet on Turkey Day, and help raise funds to further research in Dravet syndrome and support the important programs of DSF! We are [...]
SUDEP Action Day is October 23rd SUDEP ACTION Day is October 23rd! One of the top concerns for caregivers in the Dravet syndrome (DS) patient community is Sudden Unexpected Death in Epilepsy (SUDEP). Of the almost 20% mortality rate within the DS population, roughly half of those deaths are attributed to SUDEP. This [...]
