Patient Voice Webinar

By |2019-07-16T07:39:58-05:00July 16th, 2019|Categories: DSF Programs|

Patient Voice in the Development of Research Webinar Dravet Syndrome Foundation (DSF) has developed a webinar because there is an increasing recognition of the importance of the involvement of patients in the development of research that will impact their disease state. In 2018, DSF, received a generous grant from the Patient Centered Outcomes [...]

Caregiver Connect

By |2019-06-13T21:25:33-05:00June 15th, 2019|Categories: DSF Programs|

Caregiver Connect Launch DSF is pleased to announce Caregiver Connect – a new multi-year collaboration between DSF and Greenwich Biosciences for caregivers and families. Caregiver Connect is a unique multi-faceted program with a focus on helping families manage the caregiver burden and stress that accompanies caring for a child with a rare epilepsy [...]

Save the Date!

By |2019-05-15T10:16:13-05:00May 15th, 2019|Categories: DSF Programs|

2019 Day of Dravet DSF's Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one another, and be a part of a DSF's shared vision for a better outcome for those affected by Dravet syndrome. Participants come away [...]

Dravet Dialogues

By |2019-05-13T14:04:48-05:00April 15th, 2019|Categories: DSF Programs|

New Initiative: Dravet Dialogues DSF is excited to launch Dravet Dialogues, a live, interactive, virtual series of support group meetings taking place March-May 2019. These sessions give parents a chance to connect with community experts on a variety of topics while interacting in real-time with fellow parents and caregivers. We hope that through these [...]

Family Support

By |2019-05-13T14:09:39-05:00March 15th, 2019|Categories: DSF Programs|

New Support Group: Caregivers of Adults (17+) DSF is excited to launch a support group specifically for the caregivers of adults (17+) with Dravet syndrome. We understand that the needs of this community are unique and we hope this space will provide a safe-haven for parents and caregivers to connect, share stories, and [...]