Newly Diagnosed Patient Kits

By |2021-09-15T10:56:30-05:00September 16th, 2021|Categories: DSF Programs|

Newly Diagnosed Patient Kits When a family first receives a diagnosis of Dravet syndrome for their child, they may feel overwhelmed and unsure where to begin. Often your first instinct is to turn to the internet for more information. But with a rare disease such as Dravet syndrome, general information you may find [...]

Day of Dravet Registration

By |2021-09-15T09:43:53-05:00September 16th, 2021|Categories: DSF Programs|

2021 Day of Dravet Registration is Open Join the DSF Family Network for our 5th annual Day of Dravet workshops this October! DSF’s Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one another, and be a part of [...]

Strategic Plan Update

By |2021-09-15T09:44:32-05:00September 16th, 2021|Categories: DSF Programs|

2020-2021 Progress Report In 2018, Dravet Syndrome Foundation (DSF) developed a 5-year strategic plan to articulate the long‐range direction and priorities for our organization. The content for our strategic plan was derived by examining the Dravet syndrome landscape. We listened to a broad range of input from key stakeholders within our community regarding [...]

Caregiver Connect Grants

By |2021-07-15T10:12:38-05:00July 15th, 2021|Categories: DSF Programs|

Caregiver Connect Grants Dravet Syndrome Foundation (DSF) has long recognized the many needs within our community, particularly the burden of caregivers. It is a lot of work, mentally and physically. Our caregiver community frequently talks about feelings of isolation, depression about the diagnosis, and anxiety over what their child’s future looks like. On [...]

Educational Webinar Series

By |2021-06-17T11:21:18-05:00June 17th, 2021|Categories: DSF Programs|

Caring for a loved one with Dravet syndrome or another DEE Caring for a Loved One with DEE and Dravet Syndrome: Harnessing the Power of Knowledge to Enhance Diagnosis, Reduce Seizures, and Improve Overall Quality of Life for All Don’t miss, Caring for a Loved One with DEE and Dravet Syndrome: Harnessing the [...]

Virtual Conference

By |2021-05-17T18:56:35-05:00May 17th, 2021|Categories: DSF Programs|

2021 DSF Family & Professional Virtual Conference Learn the latest from top experts in Dravet syndrome! Here is your opportunity to hear the latest on new treatments and research in the field of Dravet syndrome on June 24th-26th - in your home and on your schedule. Join us live to participate in Q&A sessions with [...]

Volunteer Hours Available

By |2021-04-19T10:38:23-05:00April 19th, 2021|Categories: DSF Programs|

Order now for Dravet Awareness Month! Is your Super Siblings looking for volunteer hours for school? Is your Super Sibling interested in getting involved with DSF, but not sure where to start? We have the perfect opportunity for him or her. Choose from dozens of projects or suggest your own. Bake Sale Garage [...]

Virtual Conference

By |2021-03-16T15:28:57-05:00March 17th, 2021|Categories: DSF Programs|

2021 DSF Family & Professional Virtual Conference Research and new treatments continue to move forward in the field of Dravet syndrome. With the postponement of our 2020 event due to the pandemic, we wanted to offer a virtual learning opportunity to bridge the gap until we can meet again in person next year. [...]

Patient Assistance Grants

By |2021-02-16T09:41:38-05:00February 16th, 2021|Categories: DSF Programs|

Patient Assistance Grant Program Opens March 1 DSF has long recognized the financial burden our families face and has offered our Patient Assistance Grant (PAG) program since we were first founded in 2009. While it cannot fulfill all of the financial needs within our community, we hope that it offers a positive avenue [...]

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