Caring for a loved one with Dravet syndrome or another DEE

Caring for a Loved One with DEE and Dravet Syndrome: Harnessing the Power of Knowledge to Enhance Diagnosis, Reduce Seizures, and Improve Overall Quality of Life for All

Don’t miss, Caring for a Loved One with DEE and Dravet Syndrome: Harnessing the Power of Knowledge to Enhance Diagnosis, Reduce Seizures, and Improve Quality of Life, (produced in collaboration with the Dravet Syndrome Foundation) taking place Wednesday, June 30, at 12pm ET. This expert-led educational session which will give your important resources, strategies, planning advice and the latest news about treatments.

The financial costs and personal toll of caring for someone with developmental and epileptic encephalopathy (DEE) – such as Dravet syndrome (DS), Lennox-Gastaut syndrome, CDKL5 disorder, or tuberous sclerosis complex (TSC) – can be daunting. However, support structures and effective care options are available to help lessen the burden on caregivers.

Join an expert panel of clinicians and patient caregivers for the first session in a 3-part series, “Caring for a Loved One with DEE and Dravet Syndrome: Harnessing the Power of Knowledge to Enhance Diagnosis, Reduce Seizures, and Improve Overall Quality of Life for All,” which examines the care of patients with Dravet syndrome (DS), relates common challenges faced, and shares effective strategies to overcome them.

Session 1 is split into three 20-minute modules: Module 1: “Resources for Supporting Immediate Relatives of Those Diagnosed with DEEs”; Module 2: “Keeping Your Loved One Safe and Preventing Seizures”; and Module 3: “The First 100 Days and Beyond: Resources for Caregivers, Family, and Friends”

Save your seat for the live presentation or to watch on-demand later.