DSF is pleased to announce Caregiver Connect – a new multi-year collaboration between DSF and Greenwich Biosciences for caregivers and families. Caregiver Connect is a unique multi-faceted program with a focus on helping families manage the caregiver burden and stress that accompanies caring for a child with a rare epilepsy who has complex lifelong medical needs. Caregiver Connect offers a variety of easily accessible programs and tools to connect caregivers and help them manage and cope with the ongoing demands and stress they face on a daily basis.
Birthday Buddies Club – Register your loved one with Dravet syndrome and the week of his/her birthday they will receive a birthday card and small gift from DSF mascot, Aurora. Please note that you must be a member of the DSF Family Network and live in the U.S. Find out more information and register here.
Connect Grants – The Connect Grants program offers small grants that allow caregivers/families to host a regional gathering to bring together patients and their families. To apply for this grant, you must be a member of the DSF Family Network and live in the U.S. Find out more information and register here.
Caregiver Connect: Caregiver Burden Educational Series
Peer to Peer support
This program is fully funded through a generous educational grant from Greenwich Biosciences.