Dr. Douglas Nordli and colleagues at The University of Chicago are conducting a study on Breastfeeding and its impact in Dravet syndrome. This research project aims to find the association between breastfeeding practices and age of onset, severity, morbidity and mortality in patients with Dravet syndrome.
This non-interventional, anonymous study will gather information about your child’s demographic data; characteristics of his/her condition such age of onset of seizures, seizure frequency and type, seizure control, treatment, prolonged seizures, genetic diagnosis if available, overall health and cognitive function as well as breastfeeding practices with your child.
This survey will take about 30 minutes to complete. If you wish to participate, you can access the survey by clinking on this link.
If you have questions about this study, please contact Melissa Baltuano, MD at firstname.lastname@example.org or the principal investigator, Dr. Chalongchai Phitsanuwong, MD at email@example.com.