Incoming and Outgoing Board Presidents, Kate Hintz & Nicole Villas

Please join us in thanking Nicole Villas for volunteering on DSF’s Board of Directors for the last 6 years. Nicole joined the board in April 2015, serving as president since 2016. In addition to leading the board, Nicole also served as Scientific Director. In this role, she served as liaison between researchers, professionals, and families, and wrote lay-person reviews of published literature to help caregivers better understand research and how it related to their patients.

As I step down from the Board after two full terms, I am proud of the work DSF has accomplished in the past 6 years thanks to an incredible network of volunteers, dedicated staff and Board, incredible Executive Director (Mary Anne Meskis), and the support of the community. Thank you, everyone, for progress toward better treatments and a cure for Dravet syndrome!” – Nicole Villas

Please also join us in welcoming Kate Hintz into her new role as President of DSF’s Board of Directors. Kate joined the board in June, 2017, serving as secretary for the past 3 years.

Kate’s daughter Morgan was diagnosed with Dravet Syndrome at only 6 months old.  Although they received an early diagnosis, Morgan was medically fragile for the first 2 years of life, suffering frequent seizures and related medical complications. Her family turned to organizations like the Dravet Syndrome Foundation for guidance and support. The outreach and leadership of the organization inspired Kate to get involved in advocacy work.

She joined Compassionate Care NY in 2013, a group raising awareness for patients using or in need of medicinal cannabis in New York state. She currently volunteers as State Director. Prior to this, Kate spent 10 years in the wedding gown industry focusing on production and logistics for companies such as Pronovias, Priscilla of Boston, Reem Acra, and Marchesa. She graduated from the Chicago Academy for the Arts, a performing arts high school, and is passionate about supporting young artists. She lives Westchester County, NY and enjoys exploring the Husdon Valley with her husband and Morgan.

Thank you Nicole and Kate for your dedication to the Dravet syndrome community!