Losing someone you love or care about, particularly a child, is very painful. You may experience all kinds of difficult emotions and it may feel like the sadness you are experiencing will never go away. These are normal reactions to the loss of a loved one. Remember that there is no right or wrong way to grieve, but there are healthy ways to cope with the pain.
It is important that you take care of yourself and get support and/or professional help to work through the emotions you are feeling. Make certain your surviving children understand that you recognize their loss and grieving and that you love them. Open communication will help the entire family through the grieving process.
When you lose a child, the pain is indescribable and the silence can be deafening. With the loss comes many questions and uncertainty about the future. Although there is no clear answer to these questions, we are here to help you through this journey of grief that can only be described as exhausting. Everyone grieves differently, and there is no right or wrong way to grieve. Do whatever it is that you have to do to get through each day. Most importantly, be gentle with yourself and allow yourself to grieve.
DSF Board Member, Jenny Tischer, understands the grief that you are experiencing at this tragic time. She lost her daughter in 2010 from complications due to Dravet syndrome. (You can read her daughter’s story here.) She volunteers at her local Children’s Hospital with the bereavement department, reaching out to parents who have suffered the loss of a child. Please complete this form if you would like her to reach out to you – she is available to help in any way that she can.