In the U.S., Dravet Syndrome Awareness Month takes place each June, and International Dravet Syndrome Awareness Day is observed on June 23rd.
By raising awareness of Dravet syndrome, our community can increase knowledge in the general public, improve early diagnosis, assure that families have the information they need to manage their loved one’s care, and reduce the feelings of isolation faced by patients and their families.
Each year, DSF offers multiple ways to help raise awareness that will lead to a better understanding of Dravet syndrome. We encourage you to see where you can get involved!
2019 Awareness Month Initiatives
Every Friday from May 31- June 28, we will feature guest blogs by parents sharing their family’s journey with Dravet syndrome.
Join Nicole Villas, DSF Scientific Director, for an interactive webinar to learn about the importance of the patient voice in research.
Join us for a week of interactive education and awareness leading up to Dravet Awareness Day on June 23. Each day we will feature one hour live sessions at 8pm ET on our public Facebook page on topics that are important to all of our community members. Can’t join us live? You can go back and watch the videos at any time.