Dravet Syndrome Awareness Month takes place each June in the U.S., and International Dravet Syndrome Awareness Day is observed on June 23rd. This year, we are recognizing those that we have lost on our first annual Remembrance Day, June 15th.
By raising awareness of Dravet syndrome, our community can increase knowledge in the general public; improve early diagnosis; assure that patient families have the information they need to manage their loved one’s care; and reduce the feelings of isolation faced by patients and their families. This year’s theme is: Join the Fight!
2021 KEY DATES:
- April 9-30: Join the Fight t-shirt campaign (will ship around 5/18)
- June 1: Dravet Awareness Month Kick-off
- June 15: 1st annual Dravet Remembrance Day
- June 23: International Dravet Syndrome Awareness Day
Your support and hard work has been instrumental in the progress made for our patient community in the last decade. Now more than ever, we need your help! Please commit to Join the Fight in one or more ways this June. #fightdravet