This June – Join the Fight!

Dravet Syndrome Awareness Month takes place each June in the U.S., and International Dravet Syndrome Awareness Day is observed on June 23rd. This year, we are recognizing those that we have lost on our first annual Remembrance Day, June 15th.

By raising awareness of Dravet syndrome, our community can increase knowledge in the general public; improve early diagnosis; assure that patient families have the information they need to manage their loved one’s care; and reduce the feelings of isolation faced by patients and their families. This year’s theme is: Join the Fight!


  • April 9-30:  Join the Fight t-shirt campaign (will ship around 5/18)
  • June 1:  Dravet Awareness Month Kick-off
  • June 15:  1st annual Dravet Remembrance Day
  • June 23:  International Dravet Syndrome Awareness Day

Your support and hard work has been instrumental in the progress made for our patient community in the last decade. Now more than ever, we need your help! Please commit to Join the Fight in one or more ways this June. #fightdravet

How You Can Get Involved

Start a Fundraiser

Join our June FIGHT FOR A CURE fundraiser. Set up a personal fundraiser page for free, and raise $415 or more to get your free swag bag and t-shirt. Funds raised will support our research program which has accelerated our understanding of Dravet syndrome and helped bring new treatments to market. #fightdravet

Remembrance Day

Our 1st annual Dravet Remembrance Day will take place on June 15th and will be a time for our community to reflect and remember those who we have lost to Dravet syndrome. Submit your loved one’s name here for inclusion on our virtual Remembrance Wall. #dravetremembranceday

Awareness Day

On June 23rd, we are joining our advocacy partners and families from around the world in raising awareness of Dravet Syndrome Awareness Day. This year’s Dravet Syndrome Awareness Day falls on the day before the start of DSF’s 2021 virtual conference. #dravetawarenessday

Spread the Word

 Follow us on all of our social media channels, then be sure to like and share our daily posts to help raise awareness! Make sure to use the hashtag #fightdravet

Facebook Frames

Use our Facebook Frames to help raise awareness of Dravet syndrome and show that you are in the fight! Click here for this year’s designs and links to add a frame to your Facebook profile.

Share Your Support

 Print off one of our Dravet Awareness Month signs, share a photo of yourself or your family with the sign on social media to show that you are ready to #fightdravet