This June – Help Us Raise Public Awareness!

Dravet Syndrome Awareness Month takes place each June in the U.S., and International Dravet Syndrome Awareness Day is observed on June 23rd. This year, we are recognizing those that we have lost on our second annual Remembrance Day, June 15th.

By raising awareness of Dravet syndrome, our community can increase knowledge in the general public; improve early diagnosis; assure that patient families have the information they need to manage their loved one’s care; and reduce the feelings of isolation faced by patients and their families. This year’s theme is: Raising Public Awareness

2022 KEY DATES:

Your support and hard work has been instrumental in the progress made for our patient community in the last decade. Now more than ever, we need your help! Please commit to raise public awareness of Dravet syndrome in one or more ways this June. #curedravet

How You Can Get Involved

Spread the Word

 Follow us on all of our social media channels, then be sure to like and share our posts to help raise awareness! We also encourage you to share your family’s story. Make sure to use the hashtag #curedravet

Remembrance Day

Join us on June 15th to reflect and remember those who we have lost to Dravet syndrome. Submit your loved one’s name here for inclusion on our virtual Remembrance Wall. #dravetremembranceday

Awareness Day

On June 23rd, we are joining our advocacy partners and families from around the world in raising awareness of Dravet Syndrome Awareness Day. This year it falls on the first day of the DSF Conference. #dravetawarenessday

Start a Fundraiser

Join our June fundraiser and help us raise public awareness of Dravet syndrome. Set up a personal fundraiser page for free, and raise $250 for a new DSF t-shirt or $400 for a new DSF hooded sweatshirt.  #curedravet

Learn How to Tell Your Story

There is a power in the patient voice. As someone living with Dravet syndrome no one understands how it affects daily life more than you do. Your unique experiences should be shared to help raise awareness and the unmet needs of our patient community. Our educational videos offer advice on how to effectively tell your story and share on social media.

Effective Storytelling Techniques that Raise Awareness, Engage Donors, & Build Community

Slide deck available at this link.

How to Share Your Stories on Social Media

Slide deck available at this link.